Todd Angela L, Nutbeam Don
Sydney Health Partners, Charles Perkins Centre, University of Sydney, NSW, Australia; The Kolling Institute, Sydney Medical School, University of Sydney, NSW, Australia,
Sydney Health Partners, Charles Perkins Centre, University of Sydney, NSW, Australia; Sydney School of Public Health, University of Sydney, NSW, Australia.
Public Health Res Pract. 2018 Jun 14;28(2):2821813. doi: 10.17061/phrp2821813.
To ensure that the contribution of patients and consumers in health research is better understood, respected and fully utilised. Type of program or service: Consumer representative networks that form part of a broader quality improvement program in local health services.
Consultations were held with members of health consumer networks in Sydney, Northern Sydney and Western Sydney Local Health Districts, and the Sydney Children's Hospitals Network (at Westmead) about how to better involve consumers in health research.
Feedback from 20 volunteers suggested that consumer involvement in research would be improved if: consumers understood more about research; communications clearly explained the research, why it was relevant to consumers and what might be involved; consumers' contributions were heard and respected; and being involved in research was made an easy and positive experience.
People want to be involved in health research, and have valuable contributions to make. We must ensure that the potential contribution of patients and consumers is fully utilised, and get a great deal better at communicating benefits and risks.
确保更好地理解、尊重并充分利用患者和消费者在健康研究中的贡献。项目或服务类型：作为当地卫生服务更广泛质量改进项目一部分的消费者代表网络。
就如何让消费者更好地参与健康研究，与悉尼、北悉尼和西悉尼地方卫生区以及悉尼儿童医院网络（位于韦斯特米德）的健康消费者网络成员进行了磋商。
20名志愿者的反馈表明，如果满足以下条件，消费者在研究中的参与度将得到提高：消费者对研究有更多了解；沟通能清晰解释研究内容、研究与消费者的相关性以及可能涉及的内容；消费者的贡献能被倾听和尊重；参与研究是一次轻松且积极的体验。
人们希望参与健康研究，并能做出有价值的贡献。我们必须确保充分利用患者和消费者的潜在贡献，并在沟通益处和风险方面做得更好。
