Author Affiliations: College of Nursing, University of Saskatchewan (Drs Haase and Holtslander), Saskatoon; and Faculty of Health Sciences, School of Nursing (Dr Gifford) and School of Rehabilitation Sciences (Dr Thomas), University of Ottawa, Ontario, Canada.
Cancer Nurs. 2019 Sep/Oct;42(5):E53-E63. doi: 10.1097/NCC.0000000000000619.
People with cancer increasingly use the Internet to find information about their illness. However, little is known regarding people's use of cancer-related Internet information (CRII) to manage their patient experience, defined as patients' cumulative perceptions of interactions with the healthcare system during their illness.
The purpose of this study was to create an understanding of CRII use by people newly diagnosed with cancer and how it shapes their patient experience and informs their interactions with healthcare professionals and healthcare services.
An embedded mixed design guided this study. Nineteen people with cancer were interviewed twice and completed a survey about CRII use. Qualitative data were analyzed using thematic analysis. Descriptive statistics summarized the quantitative findings.
Participants of all ages and educational levels reported using CRII as a pivotal resource, across the cancer trajectory. Cancer-related Internet information played a central role in how patients understood their illness and when they sought and used healthcare services. Two themes emerged based on patient interviews: (1) person in context and (2) management of information.
Cancer-related Internet information plays a crucial role in how people manage their illness and take control of their patient experience. Participants used CRII to learn about their illness, support their efforts to self-manage, and complement information from professionals.
Individuals and institutions can promote and encourage tailored CRII use by engaging patients and suggesting websites based on their needs. Doing so may create efficiencies in service use and empower patients to be more involved in their own care.
越来越多的癌症患者使用互联网来获取与疾病相关的信息。然而，人们对癌症相关网络信息（CRII）在管理患者体验方面的使用知之甚少，患者体验是指患者在患病期间对与医疗保健系统互动的综合感知。
本研究旨在了解新诊断为癌症的患者对 CRII 的使用情况，以及其如何塑造患者体验，并影响他们与医疗保健专业人员和医疗服务的互动。
本研究采用嵌入式混合设计。19 名癌症患者接受了两次访谈并完成了一项关于 CRII 使用情况的调查。使用主题分析对定性数据进行分析。描述性统计总结了定量发现。
所有年龄段和教育水平的参与者都报告说，在癌症病程中，他们将 CRII 作为关键资源使用。癌症相关网络信息在患者如何理解疾病以及何时寻求和使用医疗服务方面发挥了核心作用。基于患者访谈，出现了两个主题：（1）背景下的个体和（2）信息管理。
癌症相关网络信息在患者管理疾病和控制患者体验方面发挥着至关重要的作用。参与者使用 CRII 了解自己的病情，支持他们自我管理的努力，并补充专业人员提供的信息。
个人和机构可以通过与患者互动并根据其需求推荐网站，来促进和鼓励个性化的 CRII 使用。这样做可以提高服务使用效率，使患者更积极地参与自己的护理。
