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饮食失调治疗中使用自我监测应用程序的患者体验:定性研究。

Patient Experiences Using a Self-Monitoring App in Eating Disorder Treatment: Qualitative Study.

作者信息

Lindgreen Pil, Lomborg Kirsten, Clausen Loa

机构信息

Research Unit, Center for Child and Adolescent Psychiatry, Aarhus University Hospital, Risskov, Denmark.

Department of Clinical Medicine, Faculty of Health, Aarhus University, Aarhus, Denmark.

出版信息

JMIR Mhealth Uhealth. 2018 Jun 22;6(6):e10253. doi: 10.2196/10253.

Abstract

BACKGROUND

The Recovery Record smartphone app is a self-monitoring tool for individuals recovering from an eating disorder. Unlike traditional pen-and-paper meal diaries, which are often used in eating disorder treatment, the app holds novel features, such as meal reminders, affirmations, and patient-clinician in-app linkage, the latter allowing for clinicians to continuously monitor patients' app data.

OBJECTIVE

To explore patients' experiences with using Recovery Record as part of outpatient eating disorder treatment.

METHODS

A total of 41 patients from a Danish eating disorder treatment facility were included in the study. All 41 patients participated in participant observations of individual or group treatment sessions, and 26 were interviewed about their experiences with using the app in treatment. The data material was generated and analyzed concurrently, applying the inductive methodology of Interpretive Description.

RESULTS

The patients' experiences with Recovery Record depended on its app features, the impact of these features on patients, and their specific app usage. This patient-app interaction affected and was affected by changeable contexts making patients' experiences dynamic. The patient-app interaction affected patients' placement of specific Recovery Record app features along a continuum from supportive to obstructive of individual everyday life activities including the eating disorder treatment. As an example, some patients found it supportive being notified by their clinician when their logs had been monitored as it gave them a sense of relatedness. Contrarily, other patients felt under surveillance, which was obstructive, as it made them feel uneasy or even dismissing the app.

CONCLUSIONS

Some patients experienced the app and its features as mostly supportive of their everyday life and the eating disorder treatment, while others experienced it primarily as obstructive. When applying apps in eating disorder treatment, we therefore recommend that patients and clinicians collaborate to determine how the app in question best fits the capacities, preferences, and treatment needs of the individual patient. Thus, we encourage patients and clinicians to discuss how specific features of the applied app affect the individual patient to increase the use of supportive features, while limiting the use of obstructive ones.

摘要

背景

“康复记录”智能手机应用程序是一款供饮食失调康复者使用的自我监测工具。与饮食失调治疗中常用的传统纸笔饮食日记不同,该应用程序具有一些新颖的功能,如饮食提醒、肯定语句以及患者与临床医生的应用内链接,后者使临床医生能够持续监测患者的应用程序数据。

目的

探讨患者将“康复记录”用作门诊饮食失调治疗一部分的体验。

方法

丹麦一家饮食失调治疗机构的41名患者纳入本研究。所有41名患者参与了个体或团体治疗课程的参与观察,其中26名患者就其在治疗中使用该应用程序的体验接受了访谈。数据材料通过应用解释性描述的归纳方法同时生成和分析。

结果

患者对“康复记录”的体验取决于其应用程序功能、这些功能对患者的影响以及他们对应用程序的具体使用情况。这种患者与应用程序的互动受到可变环境的影响并反过来影响环境,使患者的体验具有动态性。患者与应用程序的互动影响患者对“康复记录”应用程序特定功能的定位,范围从支持到阻碍包括饮食失调治疗在内的个人日常生活活动。例如,一些患者发现临床医生在监测他们的记录时通知他们是有帮助的,因为这给了他们一种关联感。相反,其他患者感到被监视,这是有阻碍的,因为这让他们感到不安甚至不再使用该应用程序。

结论

一些患者体验到该应用程序及其功能大多支持他们的日常生活和饮食失调治疗,而另一些患者主要体验到它具有阻碍性。因此,在饮食失调治疗中应用应用程序时,我们建议患者和临床医生合作确定所讨论的应用程序如何最适合个体患者的能力、偏好和治疗需求。因此,我们鼓励患者和临床医生讨论所应用的应用程序的特定功能如何影响个体患者,以增加支持性功能的使用,同时限制阻碍性功能的使用。

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