Science Department, Autism Speaks, 1 East 33rd Street 4th Floor, New York, NY, 10016, USA.
Department of Psychiatry and Behavioral Sciences, Duke University, Durham, NC, USA.
J Autism Dev Disord. 2018 Nov;48(11):3965-3971. doi: 10.1007/s10803-018-3642-6.
Inclusion of stakeholder voices in the allocation of research funding can increase the relevance of results and improve community engagement in research. We describe the results of an online survey that gathered input from community stakeholders regarding autism research priorities. A demographically diverse sample of respondents (N = 6004; 79.1% female; 72.5% ages 30-59; 86.4% USA) completed the survey. Results indicated a preference for applied relative to basic science topics, though both basic and applied science areas were rated as important. Respondents gave their highest ratings to research focused on co-occurring conditions, health and well-being, adult transition, and lifespan issues. These results can guide decision-making by public and private funders when developing science funding priorities and engaging in science dissemination activities.
纳入利益相关者的意见来分配研究资金，可以提高研究结果的相关性，并促进社区参与研究。我们描述了一项在线调查的结果，该调查收集了社区利益相关者对自闭症研究重点的意见。调查对象是一个具有不同人口统计学特征的样本（N=6004；79.1%为女性；72.5%年龄在 30-59 岁之间；86.4%来自美国）。结果表明，与基础科学相比，应用科学更受欢迎，但基础科学和应用科学领域都被认为是重要的。受访者对专注于共病、健康和福祉、成人过渡以及全生命周期问题的研究给予了最高评价。这些结果可以为公共和私人资助者在制定科学资助重点和开展科学传播活动时提供决策依据。
