Sherifali Diana, Ali Muhammad Usman, Ploeg Jenny, Markle-Reid Maureen, Valaitis Ruta, Bartholomew Amy, Fitzpatrick-Lewis Donna, McAiney Carrie
School of Nursing, Faculty of Health Sciences, McMaster University, Hamilton, ON, Canada.
McMaster Evidence Review and Synthesis Team, School of Nursing, Faculty of Health Sciences, McMaster University, Hamilton, ON, Canada.
J Med Internet Res. 2018 Jul 3;20(7):e10668. doi: 10.2196/10668.
The health of informal caregivers of adults with chronic conditions is increasingly vital since caregivers comprise a large proportion of supportive care to family members living in the community. Due to efficiency and reach, internet-based interventions for informal caregivers have the potential to mitigate the negative mental health outcomes associated with caregiving.
The objective of this systematic review and meta-analysis was to examine the impact of internet-based interventions on caregiver mental health outcomes and the impact of different types of internet-based intervention programs.
MEDLINE, EMBASE, CINAHL, PsycINFO, Cochrane, and AgeLine databases were searched for randomized controlled trials or controlled clinical trials published from January 1995 to April 2017 that compared internet-based intervention programs with no or minimal internet-based interventions for caregivers of adults with at least 1 chronic condition. The inclusion criteria were studies that included (1) adult informal caregivers (aged 18 years or older) of adults living in the community with a chronic condition; (2) an internet-based intervention program to deliver education, support, or monitoring to informal caregivers; and (3) outcomes of mental health. Title and abstract and full-text screening were completed in duplicate. Data were extracted by a single reviewer and verified by a second reviewer, and risk of bias assessments were completed accordingly. Where possible, data for mental health outcomes were meta-analyzed.
The search yielded 7923 unique citations of which 290 studies were screened at full-text. Of those, 13 studies met the inclusion criteria; 11 were randomized controlled trials, 1 study was a controlled clinical trial, and 1 study comprised both study designs. Beneficial effects of any internet-based intervention program resulted in a mean decrease of 0.48 points (95% CI -0.75 to -0.22) for stress and distress and a mean decrease of 0.40 points (95% CI -0.58 to -0.22) for anxiety among caregivers. For studies that examined internet-based information and education plus professional psychosocial support, the meta-analysis results showed small to medium beneficial effect sizes of the intervention for the mental health outcomes of depression (-0.34; 95% CI -0.63 to -0.05) and anxiety (-0.36; 95% CI -0.66 to -0.07). Some suggestion of a beneficial effect on overall health for the use of information and education plus combined peer and professional support was also shown (1.25; 95% CI 0.24 to 2.25). Overall, many studies were of poor quality and were rated at high risk of bias.
The review found evidence for the benefit of internet-based intervention programs on mental health for caregivers of adults living with a chronic condition, particularly for the outcomes of caregiver depression, stress and distress, and anxiety. The types of interventions that predominated as efficacious included information and education with or without professional psychological support, and, to a lesser extent, with combined peer and psychological support. Further high-quality research is needed to inform the effectiveness of interactive, dynamic, and multicomponent internet-based interventions.
PROSPERO CRD42017075436; https://www.crd.york.ac.uk/prospero/display_record.php?RecordID=75436 (Archived by WebCite at http://www.webcitation.org/709M3tDvn).
慢性病成年患者的非正式照护者的健康愈发重要,因为照护者在为社区中的家庭成员提供支持性照护方面占很大比例。由于效率和覆盖范围,针对非正式照护者的基于互联网的干预措施有可能减轻与照护相关的负面心理健康后果。
本系统评价和荟萃分析的目的是研究基于互联网的干预措施对照护者心理健康结局的影响以及不同类型的基于互联网的干预项目的影响。
检索MEDLINE、EMBASE、CINAHL、PsycINFO、Cochrane和AgeLine数据库,查找1995年1月至2017年4月发表的随机对照试验或对照临床试验,这些试验比较了基于互联网的干预项目与针对至少患有一种慢性病的成年人的非正式照护者的无互联网干预或极少互联网干预。纳入标准为包括以下内容的研究:(1)社区中患有慢性病的成年人的成年非正式照护者(年龄18岁及以上);(2)一个基于互联网的干预项目,用于向非正式照护者提供教育、支持或监测;(3)心理健康结局。标题、摘要和全文筛选均重复进行。数据由一名审阅者提取并由另一名审阅者核实,并相应完成偏倚风险评估。在可能的情况下,对心理健康结局的数据进行荟萃分析。
检索共获得7923条独特的引文,其中290项研究进行了全文筛选。其中,13项研究符合纳入标准;11项为随机对照试验,1项为对照临床试验,1项研究包含两种研究设计。任何基于互联网的干预项目的有益效果导致照护者的压力和痛苦平均降低0.48分(95%CI -0.75至-0.22),焦虑平均降低0.40分(95%CI -0.58至-0.22)。对于研究基于互联网的信息和教育加专业心理社会支持的研究,荟萃分析结果显示该干预措施对抑郁(-0.34;95%CI -0.63至-0.05)和焦虑(-0.36;95%CI -0.66至-0.07)的心理健康结局有小到中等的有益效应量。对于使用信息和教育加同伴和专业支持相结合的方式对总体健康的有益影响也有一些提示(1.25;95%CI 0.24至2.25)。总体而言,许多研究质量较差,被评为高偏倚风险。
该评价发现有证据表明基于互联网的干预项目对患有慢性病的成年人的照护者的心理健康有益,特别是对照护者的抑郁以及压力与痛苦和焦虑结局。占主导地位的有效干预类型包括有或没有专业心理支持的信息和教育,以及在较小程度上同伴和心理支持相结合的方式。需要进一步的高质量研究来了解交互式、动态和多成分的基于互联网的干预措施的有效性。
PROSPERO CRD42017075436;https://www.crd.york.ac.uk/prospero/display_record.php?RecordID=(由WebCite存档于http://www.webcitation.org/709M3tDvn) 75436 。