Ploeg Jenny, Markle-Reid Maureen, Valaitis Ruta, McAiney Carrie, Duggleby Wendy, Bartholomew Amy, Sherifali Diana
School of Nursing, Faculty of Health Sciences, McMaster University, Hamilton, ON, Canada.
Aging, Community and Health Research Unit, McMaster University, Hamilton, ON, Canada.
J Med Internet Res. 2017 Jul 28;19(7):e263. doi: 10.2196/jmir.7564.
Most adults with chronic conditions live at home and rely on informal caregivers to provide support. Caregiving can result in negative impacts such as poor mental and physical health. eHealth interventions may offer effective and accessible ways to provide education and support to informal caregivers. However, we know little about the impact of Web-based interventions for informal caregivers of community-dwelling adults with chronic conditions.
The purpose of this rapid evidence review was to assess the impact of Web-based interventions on mental health, general caregiving outcomes, and general health for informal caregivers of persons with chronic conditions living in the community.
A rapid evidence review of the current literature was employed to address the study purpose. EMBASE, MEDLINE, PsychInfo, CINAHL, Cochrane, and Ageline were searched covering all studies published from January 1995 to July 2016. Papers were included if they (1) included a Web-based modality to deliver an intervention; (2) included informal, unpaid adult caregivers of community-living adults with a chronic condition; (3) were either a randomized controlled trial (RCT) or controlled clinical trial (CCT); and (4) reported on any caregiver outcome as a result of use or exposure to the intervention.
A total of 20 papers (17 studies) were included in this review. Study findings were mixed with both statistically significant and nonsignificant findings on various caregiver outcomes. Of the 17 included studies, 10 had at least one significant outcome. The most commonly assessed outcome was mental health, which included depressive symptoms, stress or distress, and anxiety. Twelve papers examined the impact of interventions on the outcome of depressive symptoms; 4 found a significant decrease in depressive symptoms. Eight studies examined the outcome of stress or distress; 4 of these found a significant reduction in stress or distress as a result of the intervention. Three studies examined the outcome of anxiety; 2 of these found significant reductions in anxiety. Other significant results of the interventions were seen in the outcomes of caregiver gain (ie, positive aspects of caregiving), knowledge, bonding, reduction of anger-hostility, and negative mood. Based on this review, it is not possible to determine which interventions were most effective since studies differed in their design, sample, and intervention. Study results suggest that Web-based interventions may result in reduced depressive symptoms, anxiety, and stress or distress among informal caregivers of adults with chronic conditions in the community.
This is the first review assessing the impact of Web-based technologies on mental health, general caregiving outcomes, and general health for caregivers of adults with chronic conditions living in the community. Further rigorous research is needed that includes adequately powered studies examining the critical components of the intervention and the dosage needed to have an effect.
大多数患有慢性病的成年人居家生活,依靠非正式照护者提供支持。照护可能会产生负面影响,如身心健康不佳。电子健康干预措施可能为向非正式照护者提供教育和支持提供有效且便捷的方式。然而,我们对基于网络的干预措施对社区居住的患有慢性病的成年人的非正式照护者的影响知之甚少。
本快速证据综述的目的是评估基于网络的干预措施对社区中患有慢性病者的非正式照护者的心理健康、总体照护结果和总体健康的影响。
采用对当前文献的快速证据综述来实现研究目的。检索了EMBASE、MEDLINE、PsychInfo、CINAHL、Cochrane和Ageline,涵盖1995年1月至2016年7月发表的所有研究。如果论文(1)包括通过网络方式进行干预;(2)包括社区居住的患有慢性病的成年人的非正式、无报酬的成年照护者;(3)是随机对照试验(RCT)或对照临床试验(CCT);(4)报告了使用或接触干预措施后任何照护者的结果,则纳入该论文。
本综述共纳入20篇论文(17项研究)。研究结果参差不齐,在各种照护者结局方面既有统计学上显著的发现,也有不显著的发现。在纳入的17项研究中,10项至少有一项显著结果。最常评估的结局是心理健康,包括抑郁症状、压力或困扰以及焦虑。12篇论文研究了干预措施对抑郁症状结局的影响;4篇发现抑郁症状有显著下降。8项研究考察了压力或困扰的结局;其中4项发现干预措施使压力或困扰显著降低。3项研究考察了焦虑的结局;其中2项发现焦虑显著降低。干预措施的其他显著结果还体现在照护者收获(即照护的积极方面)、知识、情感联系以及愤怒-敌意和消极情绪减少等结局上。基于本综述,由于研究在设计、样本和干预措施方面存在差异,无法确定哪些干预措施最有效。研究结果表明,基于网络的干预措施可能会使社区中患有慢性病的成年人的非正式照护者的抑郁症状、焦虑以及压力或困扰有所减轻。
这是第一项评估基于网络的技术对社区中患有慢性病的成年人的照护者的心理健康、总体照护结果和总体健康影响的综述。需要进一步进行严格的研究包括有足够样本量的研究,以考察干预措施的关键组成部分以及产生效果所需的剂量。