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开展关于子宫内膜异位症的对偶、关系研究:方法、伦理和数据分析的反思性说明。

Conducting dyadic, relational research about endometriosis: A reflexive account of methods, ethics and data analysis.

机构信息

De Montfort University, UK.

Birmingham City University, UK.

出版信息

Health (London). 2020 Jan;24(1):79-93. doi: 10.1177/1363459318786539. Epub 2018 Jul 6.

DOI:10.1177/1363459318786539
PMID:29978723
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6873217/
Abstract

Despite a growing literature on the value of relational data in studies of social phenomena, individuals still commonly constitute the basic unit of analysis in qualitative research. Methodological aspects of interviewing couples, particularly interviewing partners , and of conducting dyadic analysis have received scant attention. This article describes the experience of conducting separate interviews with both partners in 22 heterosexual couples (n = 44) in a study of the impact of the gynaecological condition endometriosis. In order to advance current methodological thinking regarding interviewing couples, we describe the dyadic, relational approach employed in designing the study and our specific method of dyadic analysis. We argue that utilising separate interviews with dyadic analysis rather than conducting joint interviews, while not without its ethical, practical and analytical challenges, offers considerable methodological benefits. Such an approach allows a unique relational insight into the impact of chronic illness on couples and how they navigate chronic illness by illuminating both shared and individual interpretations, experiences, understandings and meanings.

摘要

尽管关于关系数据在社会现象研究中的价值的文献越来越多,但在定性研究中,个体仍然通常构成分析的基本单位。关于访谈夫妇、特别是访谈伴侣的方法学方面,以及关于进行对偶分析的方法学方面,都很少受到关注。本文描述了在一项关于妇科疾病子宫内膜异位症影响的研究中,对 22 对异性恋夫妇(n=44)中的每对夫妇分别进行访谈的经历。为了推进关于访谈夫妇的当前方法学思考,我们描述了设计研究中采用的对偶、关系方法以及我们的具体对偶分析方法。我们认为,利用对偶分析进行单独访谈而不是进行联合访谈,虽然并非没有伦理、实际和分析方面的挑战,但具有相当大的方法学益处。这种方法允许对慢性疾病对夫妇的影响以及他们通过阐明共同和个体的解释、经验、理解和意义来应对慢性疾病的独特关系洞察力。

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Conducting dyadic, relational research about endometriosis: A reflexive account of methods, ethics and data analysis.开展关于子宫内膜异位症的对偶、关系研究:方法、伦理和数据分析的反思性说明。
Health (London). 2020 Jan;24(1):79-93. doi: 10.1177/1363459318786539. Epub 2018 Jul 6.
2
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Partners matter: The psychosocial well-being of couples when dealing with endometriosis.伴侣很重要:子宫内膜异位症患者的夫妻双方的社会心理福祉。
Health Qual Life Outcomes. 2022 May 28;20(1):86. doi: 10.1186/s12955-022-01991-1.
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Endometriosis and Sexual Functioning: How Much Do Cognitive and Psycho-Emotional Factors Matter?子宫内膜异位症与性功能:认知和心理情绪因素有多大影响?
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Life Course Pathways Into Intergenerational Caregiving.代际照料的生命历程途径。
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A systematic review and meta-analysis of the Endometriosis and Mental-Health Sequelae; The ELEMI Project.内异症与心理健康后果的系统评价和荟萃分析;ELEMI 项目。
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本文引用的文献

1
Conducting Joint Interviews With Couples: Ethical and Methodological Challenges.与夫妻进行联合访谈:伦理和方法学挑战。
Qual Health Res. 2018 Apr;28(5):844-854. doi: 10.1177/1049732317749196. Epub 2018 Jan 5.
2
A qualitative study of the impact of endometriosis on male partners.子宫内膜异位症对男性伴侣影响的定性研究。
Hum Reprod. 2017 Aug 1;32(8):1667-1673. doi: 10.1093/humrep/dex221.
3
How Not to Let Secrets Out When Conducting Qualitative Research With Dyads.在对二元组进行定性研究时如何避免泄露机密。
Qual Health Res. 2016 May;26(6):807-15. doi: 10.1177/1049732315627427. Epub 2016 Feb 17.
4
Holistic Experiences and Strategies for Conducting Research With Couples.与夫妻开展研究的整体体验与策略
Qual Health Res. 2017 Mar;27(4):584-590. doi: 10.1177/1049732316628520. Epub 2016 Jul 10.
5
'We needed to change the mission statement of the marriage': biographical disruptions, appraisals and revisions among couples living with endometriosis.“我们需要改变婚姻的使命宣言”:子宫内膜异位症患者夫妻的人生经历中断、评估与修正
Sociol Health Illn. 2016 Jun;38(5):721-35. doi: 10.1111/1467-9566.12392. Epub 2015 Dec 17.
6
Anonymising interview data: challenges and compromise in practice.匿名化访谈数据:实践中的挑战与妥协
Qual Res. 2015 Oct;15(5):616-632. doi: 10.1177/1468794114550439.
7
ESHRE guideline: management of women with endometriosis.ESHRE 指南:子宫内膜异位症女性的管理。
Hum Reprod. 2014 Mar;29(3):400-12. doi: 10.1093/humrep/det457. Epub 2014 Jan 15.
8
Introducing dyadic interviews as a method for collecting qualitative data.介绍对偶访谈作为一种定性数据收集方法。
Qual Health Res. 2013 Sep;23(9):1276-84. doi: 10.1177/1049732313501889. Epub 2013 Aug 7.
9
The social and psychological impact of endometriosis on women's lives: a critical narrative review.子宫内膜异位症对女性生活的社会心理影响:批判性叙事评论。
Hum Reprod Update. 2013 Nov-Dec;19(6):625-39. doi: 10.1093/humupd/dmt027. Epub 2013 Jul 24.
10
Gender and health: relational, intersectional, and biosocial approaches.性别与健康:关系性、交叉性和生物社会方法。
Soc Sci Med. 2012 Jun;74(11):1661-6. doi: 10.1016/j.socscimed.2012.03.001. Epub 2012 Mar 20.