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在人群健康研究中识别和计数具有性别发育差异条件的个体。

Identifying and Counting Individuals with Differences of Sex Development Conditions in Population Health Research.

机构信息

1 interACT , Sudbury, Massachusetts.

2 Department of Health Behavior and Health Education, University of Michigan School of Public Health , Ann Arbor, Michigan.

出版信息

LGBT Health. 2018 Jul;5(5):320-324. doi: 10.1089/lgbt.2017.0180.

DOI:10.1089/lgbt.2017.0180
PMID:29979641
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10772319/
Abstract

PURPOSE

The study purpose was to examine opinions about a single-item assessment of differences of sex development (DSD) to be used in research.

METHODS

An online survey was conducted with a convenience sample of 111 adults who self-identified as intersex or having a DSD diagnosis. Participants read and provided feedback on the proposed single-item assessment.

RESULTS

The item received general endorsement to represent a population that is often not identified in research; however, participants provided suggestions for improvement.

CONCLUSION

This study represents a first step toward identifying people with DSD conditions in surveys to better understand their needs.

摘要

目的

本研究旨在探讨一项用于研究的性别发育差异(DSD)单项目评估的意见。

方法

采用便利样本,对 111 名自认为患有间性或 DSD 的成年人进行了在线调查。参与者阅读并对拟议的单项目评估提供了反馈。

结果

该项目得到了普遍认可,可以代表研究中通常无法识别的人群;然而,参与者提出了改进建议。

结论

本研究是在调查中确定 DSD 人群以更好地了解其需求的第一步。

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Malignancy in disorders of sex development.性发育障碍中的恶性肿瘤。
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Interview with William Reiner, MD, Urologist and Child Psychiatrist, on Approaches to Care for Individuals with Disorders of Sex Development and Somatic Intersex Conditions.
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