The Fenway Institute, Fenway Health, Boston, Massachusetts, USA.
Division of Adolescent/Young Adult Medicine, Boston Children's Hospital, Boston, Massachusetts, USA.
J Am Med Inform Assoc. 2022 Jun 14;29(7):1303-1309. doi: 10.1093/jamia/ocac048.
The systematic documentation of sexual orientation and gender identity data in electronic health records can improve patient-centered care and help to identify and address health disparities affecting sexual and gender minority populations. Although there are existing guidelines for sexual orientation and gender identity data among adult patients, there are not yet standard recommendations for pediatric patients. In this article, we discuss methods that pediatric primary care organizations can use to collect and document sexual orientation and gender identity information with children and adolescents in electronic health records. These recommendations take into consideration children's developmental stages, the role of caregivers, and the need to protect the privacy of this information. We also focus on the current limitations of electronic health records in capturing the nuances of sexual and gender minority identities and make suggestions for addressing these limitations.
电子健康记录中系统性记录性取向和性别认同数据可以改善以患者为中心的护理,并有助于识别和解决影响性少数群体和性别少数群体的健康差异。尽管针对成年患者的性取向和性别认同数据已经有了现有指南,但针对儿科患者的标准建议尚未出台。在本文中,我们讨论了儿科初级保健组织可以在电子健康记录中收集和记录儿童和青少年性取向和性别认同信息的方法。这些建议考虑了儿童的发展阶段、照顾者的角色以及保护这些信息隐私的需要。我们还关注了电子健康记录在捕捉性少数群体和性别少数群体身份的细微差别方面的当前局限性,并提出了应对这些局限性的建议。