Herrmann Anne, Sanson-Fisher Rob, Hall Alix, Wall Laura, Zdenkowski Nicholas, Waller Amy
Priority Research Centre for Health Behaviour, University of Newcastle and Hunter Medical Research Institute, Callaghan, Australia.
School of Medicine and Public Health, University of Newcastle, Callaghan, Australia.
BMC Res Notes. 2018 Jul 11;11(1):456. doi: 10.1186/s13104-018-3552-x.
Cancer patients and their support persons commonly feel overwhelmed when being confronted with their diagnosis and treatment options. We used a DCE to examine patients' and support persons' preferences for: (i) attending one 40 min consultation or two 20 min consultations when making a cancer treatment decision; and for (ii) receiving additional information in written form only or in both written and online forms. Here we focus on support persons' preferences and whether they differ from patients' preferences.
159 adult medical oncology patients and 64 of their support persons took part in this study. Participants were presented with a set of hypothetical scenarios and asked to indicate their most and least preferred scenario. 92% of support persons (n = 59) completed the DCE. Most preferred to receive two consultations along with written and online information (n = 30, 51%). This was the only scenario that was chosen by statistically significantly more support persons (p =0.037). The proportions of patients and support persons choosing each scenario did not differ significantly from each other (p >0.05). Our findings suggest that when making cancer treatment decisions, clinicians should consider offering patients and support persons written and online information, combined with two shorter consultations.
癌症患者及其支持人员在面对诊断和治疗选择时通常会感到不知所措。我们使用离散选择实验(DCE)来研究患者及其支持人员对于以下方面的偏好:(i)在做出癌症治疗决策时参加一次40分钟的咨询还是两次20分钟的咨询;以及(ii)仅以书面形式还是以书面和在线形式接收额外信息。在此,我们关注支持人员的偏好以及它们是否与患者的偏好不同。
159名成年肿瘤内科患者及其64名支持人员参与了本研究。参与者面对一系列假设情景,并被要求指出他们最喜欢和最不喜欢的情景。92%的支持人员(n = 59)完成了DCE。大多数人更喜欢接受两次咨询以及书面和在线信息(n = 30,51%)。这是唯一被显著更多支持人员选择的情景(p = 0.037)。选择每种情景的患者和支持人员比例彼此之间没有显著差异(p > 0.05)。我们的研究结果表明,在做出癌症治疗决策时,临床医生应考虑为患者及其支持人员提供书面和在线信息,并结合两次较短的咨询。