Case Western Reserve University, Cleveland, OH, USA.
Soc Sci Med. 2010 Apr;70(8):1155-8. doi: 10.1016/j.socscimed.2009.12.023. Epub 2010 Feb 4.
This study examined the differences of opinion between cancer patients and caregivers with regard to treatment and care decisions. 184 advanced lung cancer patients and 171 primary caregivers were recruited as a convenience sample from hospitals in Cleveland, Ohio. A telephone interview was conducted to collect data using a semi-structured questionnaire. Nonparametric tests and regression analysis were performed. The findings showed that patients and caregivers reported significant disagreement on three main issues: trade-off between treatment side effects and benefits; reporting treatment side effects to physicians, and hospice care. Caregivers were more concerned about patient's quality of life and more willing to discuss hospice issues than were patients (p < or = 01). Perceived family disagreement is associated with depression in both patients and caregivers (p < or = 01; R(2)=8%). The study provided empirical evidence for patient-caregiver disagreement about treatment and care decisions and its significant adverse impact on both patients and caregivers.
本研究旨在探讨癌症患者和照护者在治疗和护理决策方面的意见分歧。184 名晚期肺癌患者和 171 名主要照护者作为克利夫兰俄亥俄州医院的便利样本被招募。通过半结构式问卷进行电话访谈以收集数据。采用非参数检验和回归分析。研究结果表明,患者和照护者在三个主要问题上存在显著分歧:治疗副作用和益处之间的权衡;向医生报告治疗副作用和临终关怀。照护者比患者更关注患者的生活质量,更愿意讨论临终关怀问题(p<0.01)。家庭意见分歧与患者和照护者的抑郁有关(p<0.01;R²=8%)。本研究为治疗和护理决策方面的患者-照护者分歧及其对患者和照护者的显著不利影响提供了经验证据。