Biering-Sørensen Fin, Kennelly Michael, Kessler Thomas M, Linsenmeyer Todd, Pannek Jürgen, Vogel Lawrence, Wyndaele Jean-Jacques
1Clinic for Spinal Cord Injuries, Rigshospitalet, University of Copenhagen, Copenhagen, Denmark.
2Carolinas Rehabilitation, Carolinas Healthcare System, Charlotte, NC USA.
Spinal Cord Ser Cases. 2018 Jul 6;4:60. doi: 10.1038/s41394-018-0090-7. eCollection 2018.
Revision, review, and presentation of the International Spinal Cord Injury (SCI) Lower Urinary Tract (LUT) Function Basic Data Set (version 2.0).
Describe the revision and review and present the data set.
International.
The first version of the data set was revised according to new knowledge and suggestions. The review included International SCI Data Sets Committee, American Spinal Injury Association (ASIA) board, International Spinal Cord Society (ISCoS) executive and scientific committees, major organizations, and interested individuals. The data set was also on ASIA and ISCoS websites. All replies were answered and appropriate adjustments made. Finally, the data set was endorsed by ASIA board, and ISCoS executive and scientific committees.
Among revisions are adoptions of new terminology by the International Continence Society. For most variables, advice for collection of information from pediatric patients stated. For the variable 'Bladder emptying', is in the data collection form to the response category 'Normal voiding' expanded. 'Sacral Anterior Root Stimulator' is deleted as response category. For the variable 'Any involuntary urine leakage (incontinence) within the last 4 weeks' 'last 4 weeks' has replaced 'last 3 months'. The response categories have been adjusted to: 'Daily', 'Once or more per week (but not daily)', 'Less than once per week', 'Never', 'Not applicable' and 'Unknown'. For the variable 'Any drugs for the urinary tract within the last four weeks' 'last four weeks' has replaced 'last year'.
The International SCI LUT Function Basic Data Set (version 2.0) with its complete syllabus is available from http://www.iscos.org.uk/international-sci-data-sets.
对国际脊髓损伤（SCI）下尿路（LUT）功能基础数据集（第2.0版）进行修订、审核并展示。
描述修订与审核情况并展示该数据集。
国际范围。
根据新知识和建议对数据集的第一版进行修订。审核包括国际脊髓损伤数据集委员会、美国脊髓损伤协会（ASIA）理事会、国际脊髓学会（ISCoS）执行委员会和科学委员会、主要组织以及相关个人。该数据集也发布在ASIA和ISCoS的网站上。对所有回复都进行了答复并做出了适当调整。最后，该数据集得到了ASIA理事会、ISCoS执行委员会和科学委员会的认可。
修订内容包括采用了国际尿控学会的新术语。针对大多数变量，给出了从儿科患者收集信息的建议。对于“膀胱排空”变量，数据收集表中的应答类别扩展至“正常排尿”。删除了“骶前根刺激器”作为应答类别。对于“过去4周内有无非自主性漏尿（尿失禁）”变量，“过去4周”取代了“过去3个月”。应答类别调整为：“每日”、“每周一次或多次（但非每日）”、“每周少于一次”、“从不”、“不适用”和“未知”。对于“过去四周内有无使用任何尿路药物”变量，“过去四周”取代了“过去一年”。
完整大纲的国际脊髓损伤下尿路功能基础数据集（第2.0版）可从http://www.iscos.org.uk/international-sci-data-sets获取。
