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先天性心脏病患者的电子健康:综述

eHealth in patients with congenital heart disease: a review.

作者信息

Kauw Dirkjan, Koole M A C, van Dorth Jolien R, Tulevski Igor I, Somsen G Aernout, Schijven Marlies P, Dohmen Daan A J, Bouma Berto J, Mulder Barbara J M, Schuuring Mark J, Winter Michiel M

机构信息

a Department of Cardiology , Amsterdam UMC, University of Amsterdam , Amsterdam , the Netherlands.

b Netherlands Heart Institute , Utrecht , the Netherlands.

出版信息

Expert Rev Cardiovasc Ther. 2018 Sep;16(9):627-634. doi: 10.1080/14779072.2018.1508343. Epub 2018 Aug 20.

DOI:10.1080/14779072.2018.1508343
PMID:30079780
Abstract

Mobile health (mHealth), an advanced form of eHealth is expected to drastically change the field of traditional healthcare in the near future as wearables and mobile applications are rapidly increasing in number. The majority of patients with congenital heart disease (CHD) now reach adulthood and this relative young patient population seems particularly suited for mHealth, as they require lifelong follow-up, experience high morbidity burden, and were raised in this digital era. In patients with acquired heart disease the potential of eHealth has been demonstrated, yet data are still inconclusive. Areas covered: In this review of the current literature we evaluated the effect of various eHealth interventions in patients with CHD. Our search resulted in a mere 10 studies, which comprised mostly of children or adolescents with severe CHD. Home-monitoring of saturation and weight through mHealth was found to be beneficial in patients after palliation procedures, and video conferencing was found to have a positive effect on anxiety and healthcare utilization. Expert commentary: Due to high morbidity and mortality in patients with CHD and the promising results of eHealth interventions, further research is desperately needed.

摘要

移动健康(mHealth)作为电子健康(eHealth)的一种高级形式,随着可穿戴设备和移动应用数量的迅速增加,有望在不久的将来彻底改变传统医疗保健领域。大多数先天性心脏病(CHD)患者现已成年,这一相对年轻的患者群体似乎特别适合移动健康,因为他们需要终身随访,承受着较高的发病负担,且成长于这个数字时代。在获得性心脏病患者中,电子健康的潜力已得到证明,但数据仍无定论。涵盖领域:在本次对当前文献的综述中,我们评估了各种电子健康干预措施对先天性心脏病患者的影响。我们的检索仅得到10项研究,其中大多数是患有严重先天性心脏病的儿童或青少年。通过移动健康进行血氧饱和度和体重的家庭监测被发现对姑息治疗后的患者有益,视频会议被发现对焦虑和医疗保健利用有积极影响。专家评论:由于先天性心脏病患者的高发病率和死亡率以及电子健康干预措施取得的可喜成果,迫切需要进一步的研究。

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eHealth in patients with congenital heart disease: a review.先天性心脏病患者的电子健康:综述
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2
Experiences and Attitudes Toward Telemedicine in an Adult Congenital Heart Disease Clinic: Lessons Learned from the COVID-19 Pandemic.成人先天性心脏病诊所对远程医疗的经验与态度:从新冠疫情中汲取的教训
Pediatr Cardiol. 2025 Jun;46(5):1185-1193. doi: 10.1007/s00246-024-03533-6. Epub 2024 Jun 5.
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Digital Transformation in the Diagnostics and Therapy of Cardiovascular Diseases: Comprehensive Literature Review.
心血管疾病诊断与治疗中的数字转型:综合文献综述
JMIR Cardio. 2023 Aug 30;7:e44983. doi: 10.2196/44983.
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How to initiate eHealth in congenital heart disease patients?如何在先天性心脏病患者中启动电子健康服务?
Eur Heart J Digit Health. 2020 Nov 24;1(1):83-86. doi: 10.1093/ehjdh/ztaa012. eCollection 2020 Nov.
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Potential of eHealth smart technology in optimization and monitoring of heart failure treatment in adults with systemic right ventricular failure.电子健康智能技术在优化和监测成人系统性右心室衰竭心力衰竭治疗中的潜力。
Eur Heart J Digit Health. 2021 Feb 22;2(2):215-223. doi: 10.1093/ehjdh/ztab028. eCollection 2021 Jun.
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PLoS One. 2022 Sep 29;17(9):e0268446. doi: 10.1371/journal.pone.0268446. eCollection 2022.
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