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小儿人工耳蜗植入候选者母亲的生活满意度:植入手术及社会人口学因素的影响

Satisfaction with Life among Mothers of Pediatric Cochlear Implant Candidates: The Impact of Implant Operation and Sociodemographic Factors.

作者信息

Yiğit Enes, Edizer Deniz Tuna, Durna Yusuf Muhammed, Altay Mengühan Araz, Yiğit Özgür

机构信息

Department of Otolaryngology Head and Neck Surgery, Istanbul Training and Research Hospital, Istanbul, Turkey.

Clinic of Child and Adolescent Psychiatry, Edirne Sultan I. Murat State Hospital, Edirne, Turkey.

出版信息

J Int Adv Otol. 2018 Aug;14(2):202-207. doi: 10.5152/iao.2018.5531.

Abstract

OBJECTIVES

To evaluate the satisfaction with life among mothers of pediatric cochlear implant candidates regarding implant surgery and sociodemographic factors.

MATERIALS AND METHODS

Mothers of 160 pediatric patients with profound sensorineural hearing loss who underwent unilateral cochlear implant surgery were included. A questionnaire form with items on sociodemographic-familial characteristics and Satisfaction with Life Scale (SWLS) was employed via face-to-face interview method before and 12 months after the implant surgery.

RESULTS

The SWLS scores significantly improved after the implant surgery [from 19.1 (7.0) to 28.9 (4.0), p<0.000]. Being unemployed vs. employed [17.9 (6.9) vs. 24.0 (5.3), p=0.000], having another child with hearing disability [13.5 (5.7) vs. 19.7 (6.9), p=0.001], younger (12-24 months) vs. older (>24 months) age of the child at the time of implant surgery [7.1 (0.4) vs. 19.7 (6.6), p=0.001], absence vs. presence of regular follow-up visits [13.0 (0.0) vs. 19.4 (7.1), p=0.002], and presence vs. absence of change in social life after the diagnosis of disease [17.3 (6.5) vs. 20.9 (7.1), p=0.001] were associated with significantly lower SWLS scores among mothers. SWLS scores were positively correlated with patient's age at the time of implant surgery (r=0.206, p=0.009), whereas negatively correlated with the number of household members (r=-0.406, p=0.000) and number of children (r=-0.310, p=0.000).

CONCLUSION

In conclusion, our findings revealed the association of cochlear implantation with a significant increase in mother's life satisfaction, despite the unemployment, presence of another child with hearing disability, and crowded household. Our findings emphasize on the consideration of family systems with special attention to mother's emotional experiences and occupational competence in the intervention programs.

摘要

目的

评估小儿人工耳蜗植入候选者的母亲对植入手术及社会人口学因素的生活满意度。

材料与方法

纳入160例接受单侧人工耳蜗植入手术的重度感音神经性听力损失小儿患者的母亲。通过面对面访谈法,在植入手术前及术后12个月采用一份包含社会人口学-家庭特征项目及生活满意度量表(SWLS)的问卷。

结果

植入手术后SWLS评分显著改善[从19.1(7.0)提高至28.9(4.0),p<0.000]。母亲中,失业者与就业者相比[17.9(6.9)对24.0(5.3),p=0.000],有另一个听力残疾孩子者与无此情况者相比[13.5(5.7)对19.7(6.9),p=0.001],植入手术时孩子年龄较小(12 - 24个月)与较大(>24个月)相比[7.1(0.4)对19.7(6.6),p=0.001],无定期随访与有定期随访相比[13.0(0.0)对19.4(7.1),p=0.002],疾病诊断后社会生活有变化与无变化相比[17.3(6.5)对20.9(7.1),p=0.001],这些情况与母亲较低的SWLS评分显著相关。SWLS评分与植入手术时患者年龄呈正相关(r=0.206,p=0.009),而与家庭成员数量(r=-0.406,p=0.000)和孩子数量(r=-0.310,p=0.000)呈负相关。

结论

总之,我们的研究结果显示,尽管存在失业、有另一个听力残疾孩子以及家庭拥挤等情况,人工耳蜗植入与母亲生活满意度的显著提高相关。我们的研究结果强调在干预项目中要考虑家庭系统,特别关注母亲的情感体验和职业能力。

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本文引用的文献

1
Impact of socioeconomic factors on paediatric cochlear implant outcomes.社会经济因素对儿童人工耳蜗植入效果的影响。
Int J Pediatr Otorhinolaryngol. 2017 Nov;102:90-97. doi: 10.1016/j.ijporl.2017.09.010. Epub 2017 Sep 14.
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4
Parental involvement in the care and intervention of children with hearing loss.家长参与听力损失儿童的护理和干预。
Int J Audiol. 2018 May;57(sup2):S15-S26. doi: 10.1080/14992027.2016.1220679. Epub 2016 Sep 6.
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Quality of Life in Pediatric Cochlear Implantations.小儿人工耳蜗植入的生活质量
J Int Adv Otol. 2015 Dec;11(3):218-21. doi: 10.5152/iao.2015.730.
8
Pediatric cochlear implantation: an update.儿童人工耳蜗植入:最新进展。
Ital J Pediatr. 2014 Sep 2;40:72. doi: 10.1186/s13052-014-0072-8.

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