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不同神经疾病患者的照护者负担与家庭功能。

Caregiver burden and family functioning in different neurological diseases.

机构信息

a Clinical Psychology Unit , Pisa University Hospital , Pisa , Italy.

b Developmental Neurorehabilitation Unit , Pisa University Hospital , Pisa , Italy.

出版信息

Psychol Health Med. 2019 Jan;24(1):27-34. doi: 10.1080/13548506.2018.1510131. Epub 2018 Aug 24.

Abstract

Aim of this study is to examine caregiver burden and family functioning in different neurological conditions. Forty-two primary caregivers of patients with Amyotrophic Lateral Sclerosis (ALS), Alzheimer's Disease and other dementia (AD), Parkinson's Disease (PD), Acquired Brain Injuries (ABI) and Multiple Sclerosis (MS) were administered scales for the evaluation of caregiver burden (CBI) and family functioning (FACES IV). Caregiver burden was overall high, with caregivers of patients with ALS and ABI having exceeded the CBI cut-off score for possible burn-out. The average scores of caregivers of patients with AD or other dementia and PD were close to the cut-off score, whereas those of caregivers of patients with MS were significantly lower than the others. Family cohesion, family satisfaction and the quality of family communication were associated with reduced levels of caregiver burden, whereas disengagement was associated with a higher burden. The data from the present study confirm that caregiver burden is a relevant issue in the context of neurological diseases, especially for those causing higher degrees of impairment. Significant correlations with family functioning emerged as well, highlighting the importance of studying and treating caregiver burden within the context of family relations.

摘要

本研究旨在探讨不同神经疾病患者的照护者负担和家庭功能。对 42 名肌萎缩性侧索硬化症(ALS)、阿尔茨海默病和其他痴呆症(AD)、帕金森病(PD)、获得性脑损伤(ABI)和多发性硬化症(MS)患者的主要照护者进行了照护者负担(CBI)和家庭功能(FACES IV)评估量表的评估。照护者负担总体较高,ALS 和 ABI 患者的照护者的 CBI 得分超过了可能出现倦怠的临界值。AD 或其他痴呆症和 PD 患者的照护者的平均得分接近临界值,而 MS 患者的照护者的得分明显低于其他患者。家庭凝聚力、家庭满意度和家庭沟通质量与照护者负担的降低相关,而疏离则与更高的负担相关。本研究的数据证实,照护者负担是神经疾病背景下的一个相关问题,特别是对于那些导致更高程度损伤的疾病。与家庭功能的显著相关性也凸显了在家庭关系背景下研究和治疗照护者负担的重要性。

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