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多学科唇腭裂团队护理对单侧唇腭裂儿童口腔健康生活质量的影响:聚焦早期干预与间断治疗

Impact of Multidisciplinary Cleft Team Care on Oral Health Quality of Life in Children With Unilateral Cleft Lip and Palate: A Focus on Early Intervention vs. Sporadic Treatment.

作者信息

Ajami Shabnam, Ebrahimi Nezhad Mahtab, Bahraini Faezeh, Nadjmi Nasser, Zeraatkar Maryam

机构信息

Orthodontic Research Center, Shiraz University of Medical Sciences, Shiraz, Iran.

Department of Cranio-Maxillofacial Surgery, Faculty of Medicine and Health Science, University Hospital, University of Antwerp, Antwerp, Belgium.

出版信息

Int J Dent. 2025 Mar 19;2025:1642111. doi: 10.1155/ijod/1642111. eCollection 2025.

DOI:10.1155/ijod/1642111
PMID:40143932
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11944874/
Abstract

This is a study evaluating oral health-related quality of life (OHRQoL) using the Farsi version of Early Childhood Oral Health Impact Scale (F-ECOHIS) in children with unilateral cleft lip and palate (UCLP) who were treated at a multi-disciplinary cleft center, adopted from another surgeon, and the ones did not have clefts and were treated at that dental clinic. Cross-sectional study. The study was conducted at the Lip and Palate Cleft Clinic (Orthodontic Research Center, Shiraz University of Medical Sciences). The participants were enrolled from the Lip and Palate Cleft Clinic and the Department of Pediatric Dentistry. The OHRQoL of preschool children and their caregivers. The total score of (ECOHIS) in all subscales of both domains of child impact and family impact was statistically lower for the study group than the other groups. Two by two comparisons showed significant differences between the team-managed and non-team groups ( < 0.001). In any domain subscale, there were no gender differences among the three groups ( > 0.05). The team-managed group obtained better scores in all subscales in comparison to the control and the non-team patient groups; however, since randomization and a controlled surgical method were not possible, the improvements in quality-of-life scores cannot be directly related to the surgical method.

摘要

这是一项使用法尔斯语版幼儿口腔健康影响量表(F-ECOHIS)评估单侧唇腭裂(UCLP)患儿口腔健康相关生活质量(OHRQoL)的研究。这些患儿在一家多学科腭裂中心接受治疗,由另一位外科医生接收,而未患腭裂的患儿则在该牙科诊所接受治疗。横断面研究。该研究在唇腭裂诊所(设拉子医科大学正畸研究中心)进行。参与者从唇腭裂诊所和儿童牙科部门招募。研究对象为学龄前儿童及其照顾者。研究组在儿童影响和家庭影响两个领域所有子量表中的(ECOHIS)总分在统计学上低于其他组。两两比较显示团队管理组和非团队管理组之间存在显著差异(<0.001)。在任何领域子量表中,三组之间均无性别差异(>0.05)。与对照组和非团队管理患者组相比,团队管理组在所有子量表中得分更高;然而,由于无法进行随机分组和采用对照手术方法,生活质量得分的改善不能直接归因于手术方法。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5b39/11944874/2aedc527d17e/IJD2025-1642111.001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5b39/11944874/2aedc527d17e/IJD2025-1642111.001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5b39/11944874/2aedc527d17e/IJD2025-1642111.001.jpg

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本文引用的文献

1
The impact of cleft lip and palate on the quality of life of young children: A scoping review.唇腭裂对幼儿生活质量的影响:范围综述。
Med J Malaysia. 2023 Mar;78(2):250-258.
2
Influence of Cleft Lip and Palate on Oral Health-Related Quality of Life in Northern Italy: Exploring Both the Children's and Caregivers' Perspectives.唇腭裂对意大利北部口腔健康相关生活质量的影响:探索儿童和照料者的观点。
Children (Basel). 2022 Dec 17;9(12):1986. doi: 10.3390/children9121986.
3
Oral-Health-Related Quality of Life among Non-Syndromic School-Age Children with Orofacial Clefts: Results from a Cross-Sectional Study in Northern Italy.
意大利北部非综合征性学龄期口腔颌面裂患儿的口腔健康相关生活质量:一项横断面研究的结果
Children (Basel). 2022 Jul 21;9(7):1098. doi: 10.3390/children9071098.
4
Life Quality of Children Affected by Cleft Lip Palate and Alveolus (CLPA).唇腭裂及牙槽嵴裂患儿的生活质量
Children (Basel). 2022 May 21;9(5):757. doi: 10.3390/children9050757.
5
Quality of Life of Adopted Chinese Versus Nonadopted Dutch Children with Cleft Lip and/or Palate: A Propensity Score Matched Analysis.中文译文:中文和非中文背景唇腭裂儿童生活质量的比较:倾向评分匹配分析。
Cleft Palate Craniofac J. 2022 Dec;59(12):1502-1508. doi: 10.1177/10556656211050795. Epub 2021 Dec 6.
6
Internationally adopted children with and without a cleft lip and palate showed no differences in language ability at school-age.有唇腭裂和没有唇腭裂的国际收养儿童在学龄期的语言能力没有差异。
Acta Paediatr. 2021 Jan;110(1):273-279. doi: 10.1111/apa.15301. Epub 2020 May 13.
7
The Effect of Teamwork on Children With Cleft Lip and Palate and Their Mother's Quality of Life.团队合作对唇腭裂患儿及其母亲生活质量的影响。
Cleft Palate Craniofac J. 2019 Nov;56(10):1353-1358. doi: 10.1177/1055665619853749. Epub 2019 Jun 11.
8
Quality of Life Among Dutch Children With a Cleft Lip and/or Cleft Palate: A Follow-Up Study.荷兰唇腭裂儿童的生活质量:一项随访研究
Cleft Palate Craniofac J. 2019 Sep;56(8):1065-1071. doi: 10.1177/1055665619840220. Epub 2019 Apr 29.
9
Quality of Life and Patient Satisfaction in Adults Treated for a Cleft Lip and Palate: A Qualitative Analysis.唇腭裂成年患者的生活质量与患者满意度:一项定性分析
Cleft Palate Craniofac J. 2019 Oct;56(9):1171-1180. doi: 10.1177/1055665619843410. Epub 2019 Apr 24.
10
The relationship between health-related quality of life and speech in patients with cleft palate.腭裂患者健康相关生活质量与言语功能的关系。
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