Senneseth Mette, Dyregrov Atle, Matthiesen Stig B, Pereira Mariana, Hauken May A
Center for Crisis Psychology (CCP), Faculty of Psychology, University of Bergen, Bergen, Norway.
Faculty of Health and Social Sciences, Department of Nursing, Western Norway University of Applied Sciences, Bergen, Norway.
Eur J Cancer Care (Engl). 2019 Jan;28(1):e12907. doi: 10.1111/ecc.12907. Epub 2018 Sep 4.
Social support is an important predictor of the well-being of partners of cancer patients. Those who are caring for minors (well parents) may be in special need of such support. The aim of this study was to evaluate the 4-month impact of a psychoeducational social support intervention, named the Cancer-PEPSONE programme (CPP), on well parents' received and perceived social support, as well as on their psychological distress, quality of life (QOL) and parental capacity. The study was an open randomised controlled trial with a parallel-group design (N = 35; Intervention = 17, Controls = 18). The participants in the intervention group received CPP in their homes. Controls received support as usual. Data were collected in Norway using validated self-report questionnaires. Questionnaires were sent by post, before randomisation (T1), and at three- (T2) and six-month (T3) follow-up. Linear mixed models analyses revealed intervention effects on received (p = 0.04, d = 0.6) and perceived (p = 0.01, d = 1.0) social support, as well as on parental capacity (p = 0.02, d = 1.0), but not on psychological distress and QOL. Social support mediated the relationship between receiving CPP and later psychological distress. CPP may help well parents in maintaining social support and enhancing parental capacity. An improvement in social support may alleviate well parents' psychological distress.
社会支持是癌症患者伴侣幸福感的重要预测指标。那些照顾未成年人的人（即健康的父母）可能特别需要这种支持。本研究的目的是评估一项名为癌症患者心理教育社会支持干预项目（CPP）的为期4个月的干预措施对健康父母所获得的和感知到的社会支持、心理困扰、生活质量（QOL）以及育儿能力的影响。该研究是一项采用平行组设计的开放性随机对照试验（N = 35；干预组 = 17，对照组 = 18）。干预组的参与者在自己家中接受CPP干预。对照组则照常接受支持。在挪威，使用经过验证的自我报告问卷收集数据。问卷在随机分组前（T1）、三个月（T2）和六个月（T3）随访时通过邮寄方式发放。线性混合模型分析显示，干预对所获得的社会支持（p = 0.04，d = 0.6）、感知到的社会支持（p = 0.01，d = 1.0）以及育儿能力（p = 0.02，d = 1.0）有影响，但对心理困扰和生活质量没有影响。社会支持介导了接受CPP与后期心理困扰之间的关系。CPP可能有助于健康父母维持社会支持并提高育儿能力。社会支持的改善可能会减轻健康父母的心理困扰。
