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心力衰竭与抑郁症的基于网络的认知行为疗法患者体验:定性研究

Patient Experiences of Web-Based Cognitive Behavioral Therapy for Heart Failure and Depression: Qualitative Study.

作者信息

Lundgren Johan, Johansson Peter, Jaarsma Tiny, Andersson Gerhard, Kärner Köhler Anita

机构信息

Division of Nursing Science, Department of Social and Welfare Studies, Linköping University, Norrköping, Sweden.

Mary Mackillop Institute, Australian Catholic University, Melbourne, Australia.

出版信息

J Med Internet Res. 2018 Sep 5;20(9):e10302. doi: 10.2196/10302.

Abstract

BACKGROUND

Web-based cognitive behavioral therapy (wCBT) has been proposed as a possible treatment for patients with heart failure and depressive symptoms. Depressive symptoms are common in patients with heart failure and such symptoms are known to significantly worsen their health. Although there are promising results on the effect of wCBT, there is a knowledge gap regarding how persons with chronic heart failure and depressive symptoms experience wCBT.

OBJECTIVE

The aim of this study was to explore and describe the experiences of participating and receiving health care through a wCBT intervention among persons with heart failure and depressive symptoms.

METHODS

In this qualitative, inductive, exploratory, and descriptive study, participants with experiences of a wCBT program were interviewed. The participants were included through purposeful sampling among participants previously included in a quantitative study on wCBT. Overall, 13 participants consented to take part in this study and were interviewed via telephone using an interview guide. Verbatim transcripts from the interviews were qualitatively analyzed following the recommendations discussed by Patton in Qualitative Research & Evaluation Methods: Integrating Theory and Practice. After coding each interview, codes were formed into categories.

RESULTS

Overall, six categories were identified during the analysis process. They were as follows: "Something other than usual health care," "Relevance and recognition," "Flexible, understandable, and safe," "Technical problems," "Improvements by real-time contact," and "Managing my life better." One central and common pattern in the findings was that participants experienced the wCBT program as something they did themselves and many participants described the program as a form of self-care.

CONCLUSIONS

Persons with heart failure and depressive symptoms described wCBT as challenging. This was due to participants balancing the urge for real-time contact with perceived anonymity and not postponing the work with the program. wCBT appears to be a valuable tool for managing depressive symptoms.

摘要

背景

基于网络的认知行为疗法(wCBT)已被提议作为治疗心力衰竭和抑郁症状患者的一种可能方法。抑郁症状在心力衰竭患者中很常见,且已知此类症状会显著恶化他们的健康状况。尽管wCBT的效果有一些令人鼓舞的结果,但对于慢性心力衰竭和抑郁症状患者如何体验wCBT仍存在知识空白。

目的

本研究的目的是探索和描述心力衰竭和抑郁症状患者通过wCBT干预参与并接受医疗保健的经历。

方法

在这项定性、归纳、探索性和描述性研究中,对有wCBT项目经历的参与者进行了访谈。参与者是通过在先前纳入的关于wCBT的定量研究参与者中进行有目的抽样纳入的。总体而言,13名参与者同意参加本研究,并通过电话使用访谈指南进行了访谈。访谈的逐字记录按照帕顿在《定性研究与评估方法:理论与实践相结合》中讨论的建议进行了定性分析。对每次访谈进行编码后,将代码形成类别。

结果

总体而言,在分析过程中确定了六个类别。如下所示:“不同于常规医疗保健的事物”、“相关性和认可度”、“灵活、易懂且安全”、“技术问题”、“通过实时联系得到改善”以及“更好地管理我的生活”。研究结果中的一个核心且常见的模式是,参与者将wCBT项目体验为他们自己所做的事情,许多参与者将该项目描述为一种自我护理形式。

结论

心力衰竭和抑郁症状患者将wCBT描述为具有挑战性。这是因为参与者要在对实时联系的渴望与感知到的匿名性之间进行平衡,且不能推迟该项目的工作。wCBT似乎是管理抑郁症状的一种有价值的工具。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6f8f/6231888/7d1b193f3b89/jmir_v20i9e10302_fig1.jpg

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