National Taipei University of Nursing and Health Sciences, Taiwan.
Taichung Veterans General Hospital, Taiwan.
Clin Nurs Res. 2020 May;29(4):217-225. doi: 10.1177/1054773818799226. Epub 2018 Sep 6.
This descriptive phenomenological study was conducted to explore the lived experiences of adolescents with cancer. Purposive sampling was used to recruit participants. In-depth, nonstructured interviews were conducted to collect data, and narratives were analyzed using Colaizzi's seven-step method. Data saturation was achieved after interviewing 16 participants. The study was divided into three main themes and 16 subthemes: suffering (caused by symptoms, therapy, cancer recurrence, the feeling of being trapped in hospital, the burden of food therapy, delayed education, the absence of peer relationships, and limited activities), emotional reactions (fear, worry, sadness, anger, and loneliness), and rebalancing (strong family relationships, optimistic thinking, and healthy lifestyles). While adolescents with cancer experience changes in lifestyle, and physical, psychological, and social burden, they also have positive life experiences. Building appropriate learning systems, improving communication skill, and providing appropriate food therapy may alleviate the psychological burden experienced by young patients.
本描述性现象学研究旨在探讨癌症青少年的生活体验。采用目的性抽样招募参与者。通过深入的非结构化访谈收集数据,并使用 Colaizzi 的七步法分析叙述。对 16 名参与者进行访谈后达到数据饱和。研究分为三个主要主题和 16 个副标题:痛苦(由症状、治疗、癌症复发、被困在医院的感觉、食疗负担、教育延迟、缺乏同伴关系和活动受限引起)、情绪反应(恐惧、担忧、悲伤、愤怒和孤独)和重新平衡(强大的家庭关系、乐观思维和健康的生活方式)。虽然癌症青少年的生活方式和身体、心理和社会负担发生了变化,但他们也有积极的生活体验。建立适当的学习系统、提高沟通技巧和提供适当的食疗可能会减轻年轻患者的心理负担。