Lewandowska Anna, Zych Barbara, Papp Katalin, Zrubcová Dana, Kadučáková Helena, Šupínová Mária, Apay Serap Ejder, Nagórska Małgorzata
Institute of Healthcare, State School of Technology and Economics, 37-500 Jaroslaw, Poland.
Institute of Health Sciences, Medical College of Rzeszow University, 35-310 Rzeszow, Poland.
Children (Basel). 2021 Dec 10;8(12):1173. doi: 10.3390/children8121173.
Cancer diseases in children and adolescents are considered to be one of the most serious health problems in the world. It is estimated that about 151,435 cases are diagnosed in children annually. Children with cancer experience many comorbid symptoms related to diagnosis and treatment that can profoundly affect their lives. They experience physical and emotional suffering, which affects their well-being and physical fitness, influencing the prognosis and deteriorating their physical, mental and social functioning. Given the limited data, an attempt was made to assess the problems of the biopsychosocial sphere of need and stressors among children and adolescents treated for cancer. Accurate symptom assessment is essential to ensure high-quality care and effective treatment.
The qualitative study was conducted in pediatric oncology of hospitals in Poland. Children diagnosed with cancer were invited to participate in the study to assess their problems, stressors and needs.
The study included 520 people, where female sex constituted 48% and male 52%. The mean age of the children is 13.2 SD = 2.5. Negative experiences related to the disease are experienced by 82% of children. Among the surveyed children, the most experienced were anxiety (61%). The conducted research shows that as many as 69% of all respondents experienced states that indicate severe depression. The most common somatic problems reported by children were pain (58%). The most dominant areas of life that had a negative impact was body image (85%).
Children and adolescents diagnosed with neoplastic disease experience many problems and stressors in every sphere of life, which undoubtedly affects a high level of unmet needs. The main category of needs concerning the challenges faced by children with cancer was psychological and care problems. In the youth group, the needs were mainly related to education and social support.
儿童和青少年癌症被认为是世界上最严重的健康问题之一。据估计,每年约有151435例儿童被诊断出患有癌症。患癌儿童会经历许多与诊断和治疗相关的合并症状,这些症状会深刻影响他们的生活。他们遭受身体和情感上的痛苦,这会影响他们的幸福感和身体健康,影响预后,并使他们的身体、心理和社会功能恶化。鉴于数据有限,我们试图评估接受癌症治疗的儿童和青少年在生物心理社会需求和压力源方面的问题。准确的症状评估对于确保高质量护理和有效治疗至关重要。
这项定性研究在波兰医院的儿科肿瘤科室进行。邀请被诊断患有癌症的儿童参与研究,以评估他们的问题、压力源和需求。
该研究共纳入520人,其中女性占48%,男性占52%。儿童的平均年龄为13.2岁,标准差为2.5。82%的儿童经历了与疾病相关的负面经历。在接受调查的儿童中,最常出现的是焦虑(61%)。所进行的研究表明,多达69%的受访者经历了表明严重抑郁的状态。儿童报告的最常见躯体问题是疼痛(58%)。对生活产生负面影响的最主要领域是身体形象(85%)。
被诊断患有肿瘤疾病的儿童和青少年在生活的各个方面都经历了许多问题和压力源,这无疑导致了大量未满足的需求。癌症儿童面临的挑战中,主要的需求类别是心理和护理问题。在青少年群体中,需求主要与教育和社会支持有关。