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对中度至重度智力残疾者的约束干预措施:支持人员和家庭成员的观点。

Restraint interventions in people with moderate to profound intellectual disabilities: Perspectives of support staff and family members.

作者信息

Embregts Petri J C M, Negenman Annemarieke, Habraken Jolanda M, de Boer Marike E, Frederiks Brenda J M, Hertogh Cees M P M

机构信息

Tranzo, Tilburg School of Social and Behavioral Sciences, Tilburg University, Tilburg, The Netherlands.

Dichterbij Innovation and Science, Gennep, The Netherlands.

出版信息

J Appl Res Intellect Disabil. 2019 Jan;32(1):172-183. doi: 10.1111/jar.12519. Epub 2018 Sep 7.

DOI:10.1111/jar.12519
PMID:30191671
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7379273/
Abstract

BACKGROUND

Due to incompatibilities in communication, it is key that family members and support staff can take the perspective of people with moderate to profound intellectual disabilities (ID) whilst putting aside their own perspectives.

METHOD

Ten vignettes describing types of restraint interventions (RIs) were presented to 20 unique pairs of support staff and family members related to individuals with moderate to profound ID.

RESULTS

In taking their own perspective, more than half of the support staff and family members perceived all RIs as involuntary and severe. In contrast, when asked to put themselves in the position of the client/family member, only three RIs were considered involuntary by a majority of support staff and family members.

CONCLUSIONS

These results indicate that support staff and family members can take into account the perspective of people with moderate to profound ID in the evaluation and consideration of involuntary care.

摘要

背景

由于沟通方面的不兼容性,家庭成员和支持人员能够抛开自身观点,从患有中度至重度智力残疾(ID)的人的角度出发看待问题至关重要。

方法

向与患有中度至重度ID的个体相关的20对不同的支持人员和家庭成员展示了10个描述约束干预(RI)类型的小场景。

结果

从自身角度出发时,超过一半的支持人员和家庭成员认为所有的RI都是非自愿且严重的。相比之下,当被要求设身处地为服务对象/家庭成员着想时,大多数支持人员和家庭成员仅认为三种RI是非自愿的。

结论

这些结果表明,支持人员和家庭成员在评估和考虑非自愿护理时能够考虑到患有中度至重度ID的人的观点。

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How do people with moderate intellectual disability evaluate restrictions in daily care?中度智力残疾者如何评估日常护理中的限制?
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Respecting autonomy in the end-of-life care of people with intellectual disabilities: a qualitative multiple-case study.尊重智障人士临终关怀中的自主权:一项定性多案例研究。
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Reducing and eliminating restraint of people with developmental disabilities and severe behavior disorders: an overview of recent research.减少和消除发育障碍和严重行为障碍者的约束:近期研究概述。
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The reported experience of four women with intellectual disabilities receiving emergency psychiatric services in Canada: a qualitative study.加拿大四名智障女性接受紧急精神科服务的报告经验:一项定性研究。
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Staff variables associated with the challenging behaviour of clients with severe or profound intellectual disabilities.与重度或极重度智力残疾客户的挑战性行为相关的工作人员变量。
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