Hsieh Wen-Huei, Lee Wen-Chung, Hsieh Ru-Lan
Department of Child Care and Education, College of Human Ecology, Chang Gung University of Science and Technology Institute of Epidemiology and Preventive Medicine, College of Public Health, National Taiwan University Department of Physical Medicine and Rehabilitation, Shin Kong Wu Ho-Su Memorial Hospital Department of Physical Medicine and Rehabilitation, School of Medicine, College of Medicine, Taipei Medical University, Taipei, Taiwan.
Medicine (Baltimore). 2018 Sep;97(36):e12106. doi: 10.1097/MD.0000000000012106.
This study investigated the effects of a short-term family-centered workshop for children with developmental delays.This study was conducted in a rehabilitation outpatient clinic of a teaching hospital. We recruited 30 children with developmental delays and their parents as the study group and 57 age- and sex-matched children with typical development and their parents as the control group. The workshop was conducted for the children with developmental delays and their parents in the form of one 2-hour session per week for 6 weeks by health and education professionals by using a family-centered multidisciplinary approach. The Mandarin-Chinese Communicative Developmental Inventory and Peabody Developmental Motor Scales-Second Edition were used to assess the communication and motor skills of the children with developmental delays. The parent form of the Pediatric Outcomes Data Collection Instrument, Child Health Questionnaire, Pediatric Quality of Life (PedsQL) Inventory, and PedsQL Family Impact Module were administered to the parents of both groups.On study commencement, no significant differences were noted in functional performance and family impact between the children with developmental delays and those without delays. The children with developmental delays had lower health and health-related quality of life (HRQOL) scores than the children with typical development. Following the workshop, the study group exhibited significant improvements in physical health (94.2 vs 80.2, effect size: 1.00, P = .026), global function (94.8 vs 78.7, effect size: 0.88, P = .006), impact of the child's health on parental HRQOL (85.0 vs 70.4, effect size: 0.81, P = .043), and parental HRQOL (81.3 vs 65.0, effect size: 0.81, P = .015). No significant differences were recorded in function, health, HRQOL, or family impact between the children with developmental delays and those with typical development after 6 weeks.The multidisciplinary short-term family-centered workshop for children with developmental delays improved the children's physical health and global functional skills, and it reduced the impact of the child's health on parental HRQOL while also improving parental HRQOL.
本研究调查了以家庭为中心的短期工作坊对发育迟缓儿童的影响。本研究在一家教学医院的康复门诊进行。我们招募了30名发育迟缓儿童及其父母作为研究组，以及57名年龄和性别匹配的发育正常儿童及其父母作为对照组。工作坊以每周一次、每次2小时、共6周的形式，由健康和教育专业人员采用以家庭为中心的多学科方法，为发育迟缓儿童及其父母开展。使用《汉语沟通发展量表》和《皮博迪发展运动量表第二版》评估发育迟缓儿童的沟通和运动技能。向两组儿童的父母发放了《儿科结果数据收集工具家长版》、《儿童健康问卷》、《儿科生活质量量表》和《儿科生活质量量表家庭影响模块》。在研究开始时，发育迟缓儿童与无发育迟缓儿童在功能表现和家庭影响方面未发现显著差异。发育迟缓儿童的健康及与健康相关的生活质量（HRQOL）得分低于发育正常儿童。工作坊结束后，研究组在身体健康（94.2对80.2，效应量：1.00，P = 0.026）、整体功能（94.8对78.7，效应量：0.88，P = 0.006）、儿童健康对父母HRQOL的影响（85.0对70.4，效应量：0.81，P = 0.043）以及父母HRQOL（81.3对65.0，效应量：0.81，P = 0.015）方面均有显著改善。6周后，发育迟缓儿童与发育正常儿童在功能、健康、HRQOL或家庭影响方面未记录到显著差异。以家庭为中心的多学科短期工作坊改善了发育迟缓儿童的身体健康和整体功能技能，减少了儿童健康对父母HRQOL的影响，同时也改善了父母的HRQOL。
