The Movement Disorders Centre, The Edmond J Safra Program in Parkinson's Disease, University of Toronto, Toronto, Canada.
Curr Neurol Neurosci Rep. 2013 Aug;13(8):367. doi: 10.1007/s11910-013-0367-y.
Palliative care for Parkinson disease (PD) is a new concept in neurodegenerative care. Abundant evidence exists supporting PD as increasing risk of death, most commonly from aspiration pneumonia despite improvements in motor and non-motor symptom management. Palliative care emphasizes an interdisciplinary and holistic approach to symptom management. In the following, the timing for considering palliative care, the communication surrounding this stage of illness, and assessing patients and caregivers will be discussed. Evaluation using the Edmonton Symptom Assessment Scale-PD can help practitioners identify symptoms requiring intervention and track their response to interventions. Adopting palliative care principles will allow neurologists to fulfill the needs of PD patients in advanced stages to the end of life.
帕金森病(PD)的姑息治疗是神经退行性疾病护理中的一个新概念。有大量证据表明,PD 会增加死亡风险,尽管运动和非运动症状的管理得到了改善,但最常见的死因仍是吸入性肺炎。姑息治疗强调采用多学科和整体的方法来进行症状管理。在下面,将讨论考虑姑息治疗的时机、围绕这一疾病阶段的沟通以及评估患者和照护者的问题。使用埃德蒙顿症状评估量表-帕金森病(Edmonton Symptom Assessment Scale-PD)进行评估可以帮助医生识别需要干预的症状,并跟踪其对干预措施的反应。采用姑息治疗原则将使神经科医生能够满足晚期 PD 患者的需求,直至生命的尽头。