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《你会记得我吗?》:与青少年谈论死亡

"Will You Remember Me?": Talking with Adolescents About Death and Dying.

机构信息

National Institute of Mental Health, 10 Center Drive MSC 1276, NIH Building 10 CRC 6-5340, Bethesda, MD 20892-1276, USA.

Office of the Clinical Director, National Institute of Mental Health, 10 Center Drive MSC 1276, NIH Building 10 CRC 6-5360, Bethesda, MD 20892-1276, USA.

出版信息

Child Adolesc Psychiatr Clin N Am. 2018 Oct;27(4):511-526. doi: 10.1016/j.chc.2018.05.001. Epub 2018 Jul 31.

DOI:10.1016/j.chc.2018.05.001
PMID:30219214
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11086521/
Abstract

This article describes the preparation, rationale, and benefits of talking with adolescents who have life-threatening or life-limiting illness about advance care planning (ACP) and end-of-life concerns in a developmentally sensitive manner. The first step is to ensure that a health care provider is ready to work with adolescents in ACP discussions by taking a self-inventory, learning communication skills, and understanding individual barriers. The authors then outline how to assess patient and family readiness, including developmental, cultural, personal, and psychosocial considerations. Evidence-based techniques for respectfully and productively engaging adolescents in ACP conversations are discussed.

摘要

本文介绍了以发展敏感的方式与患有危及生命或生命有限的疾病的青少年就预先护理计划 (ACP) 和临终问题进行交谈的准备、基本原理和好处。第一步是通过自我评估、学习沟通技巧和了解个人障碍,确保医疗保健提供者准备好与青少年一起进行 ACP 讨论。然后,作者概述了如何评估患者和家庭的准备情况,包括发展、文化、个人和心理社会方面的考虑。还讨论了尊重和有效地使青少年参与 ACP 对话的循证技术。

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Factors associated with health professionals decision to initiate paediatric advance care planning: A systematic integrative review.与医疗专业人员启动儿科预立医疗计划决策相关的因素:一项系统综合综述。
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本文引用的文献

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Paediatric advance care planning survey: a cross-sectional examination of congruence and discordance between adolescents with HIV/AIDS and their families.儿科预先护理计划调查:对感染艾滋病毒/艾滋病青少年及其家庭之间一致性和不一致性的横断面研究。
BMJ Support Palliat Care. 2019 Mar;9(1):e22. doi: 10.1136/bmjspcare-2016-001224. Epub 2017 Sep 21.
2
Health and death literacy and cultural diversity: insights from hospital-employed interpreters.健康素养和死亡素养与文化多样性:医院雇佣口译员的视角。
BMJ Support Palliat Care. 2020 Mar;10(1):e8. doi: 10.1136/bmjspcare-2016-001225. Epub 2017 Jul 4.
3
A randomized clinical trial of adolescents with HIV/AIDS: pediatric advance care planning.一项针对感染艾滋病毒/艾滋病青少年的随机临床试验:儿科预先护理计划。
AIDS Care. 2017 Oct;29(10):1287-1296. doi: 10.1080/09540121.2017.1308463. Epub 2017 Mar 30.
4
Conceptualization of Success in Young Adulthood.青年期成功的概念化。
Child Adolesc Psychiatr Clin N Am. 2017 Apr;26(2):191-198. doi: 10.1016/j.chc.2016.12.002.
5
Acceptability of Family-Centered Advanced Care Planning for Adolescents With HIV.以家庭为中心的针对感染艾滋病毒青少年的临终关怀计划的可接受性。
Pediatrics. 2016 Dec;138(6). doi: 10.1542/peds.2016-1854. Epub 2016 Nov 1.
6
End of life care for infants, children and young people with life limiting conditions: summary of NICE guidance.为患有危及生命疾病的婴幼儿及青少年提供临终关怀:英国国家卫生与临床优化研究所指南摘要
BMJ. 2016 Dec 8;355:i6385. doi: 10.1136/bmj.i6385.
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Advance care discussions with young people affected by life-limiting neuromuscular diseases: A systematic literature review and narrative synthesis.与受危及生命的神经肌肉疾病影响的年轻人进行的临终护理讨论:一项系统的文献综述与叙述性综合分析
Neuromuscul Disord. 2017 Feb;27(2):115-119. doi: 10.1016/j.nmd.2016.11.011. Epub 2016 Nov 21.
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Advance care planning in adolescents with cystic fibrosis: A quality improvement project.青少年囊性纤维化患者的预先医疗计划:一项质量改进项目。
Pediatr Pulmonol. 2016 Dec;51(12):1304-1310. doi: 10.1002/ppul.23559. Epub 2016 Oct 17.
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Cultural and religious beliefs and values, and their impact on preferences for end-of-life care among four ethnic groups of community-dwelling older persons.文化和宗教信仰及价值观,以及它们对四类居家老年人临终关怀偏好的影响。
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J Palliat Med. 2016 Oct;19(10):1032-1038. doi: 10.1089/jpm.2015.0354. Epub 2016 Aug 23.