1 Indiana University-Purdue University Indianapolis, Indianapolis, Indiana, USA.
2 University of Michigan-Dearborn, Dearborn, Michigan, USA.
Qual Health Res. 2019 Feb;29(3):404-417. doi: 10.1177/1049732318800674. Epub 2018 Sep 20.
Although young adult cancer survivors (YACSs) and their families face unique psychosocial and health-related challenges related to cancer, little is known about how the illness experience of cancer may positively transform their mental, physical, and social well-being following primary treatment. We conducted individual qualitative interviews with 30 YACSs and 21 of their family members. Participants described positive transformations as (a) perspective shifts on health and risk, (b) behavior changes toward more proactive healthy living, and (c) opportunities for more open communication about wellness. Few participants reported little to no transformation based on a fatalistic view of their diagnosis. Our findings illuminate important implications for health promotion and support in this population, including the role health care providers can play following primary treatment. We also discuss how YACSs can serve as important advocates for others and the need for more work exploring how and why positive illness transformations take place.
尽管青年癌症幸存者（YACS）及其家人面临与癌症相关的独特心理社会和健康相关挑战，但对于癌症的患病经历如何在主要治疗后积极转变他们的心理、身体和社会幸福感，知之甚少。我们对 30 名 YACS 和 21 名家庭成员进行了个体定性访谈。参与者描述了积极的转变，包括(a)对健康和风险的看法转变，(b)更积极主动地健康生活的行为改变，以及(c)更多关于健康的开放沟通的机会。少数参与者根据他们的诊断的宿命论观点报告几乎没有或没有转变。我们的研究结果阐明了该人群中健康促进和支持的重要意义，包括医疗保健提供者在主要治疗后可以发挥的作用。我们还讨论了 YACS 如何成为他人的重要倡导者，以及需要更多的工作来探索积极的疾病转变是如何以及为什么发生的。
