Wharton Whitney, Epps Fayron, Kovaleva Mariya, Bridwell Lindsey, Tate Rachanice Candy, Dorbin Cornelya D, Hepburn Kenneth
Emory University.
Georgia State University.
J Holist Nurs. 2019 Sep;37(3):214-224. doi: 10.1177/0898010118801636. Epub 2018 Oct 4.
Art interventions have demonstrated holistic benefits for persons living with dementia and their caregivers. In this article, we describe the results of a pilot photojournalism program for 10 unpaid caregivers of persons living with dementia, with respect to caregivers' experience in the program and their psychological well-being. Caregivers participated in four sessions led by a professional photojournalist who taught principles of photography. Between the sessions, caregivers took photographs that represented what caregiving meant to them using digital cameras provided in the program. During the sessions, instruction was interspersed with discussion of caregivers' photographs. Caregiver burden and depressive symptoms were measured pre- and postprogram. Qualitative exploration included sessions' observations, viewing caregivers' photographs, and recording caregivers' accompanying comments. For participants with pre- and postprogram data, caregiver burden decreased significantly ( = .037). For caregivers with pre- and postprogram data, depressive symptoms decreased nonsignificantly ( = .066). Clinically meaningful reductions in caregiver burden and depressive symptoms were attained. Qualitative findings highlighted caregivers' strong engagement with the project, the facilitator, and other participants, and reflection on multiple aspects of their experience. This intervention helped caregivers creatively communicate their experience and demonstrated efficacy in the improvement of caregivers' psychological well-being.
艺术干预已证明对痴呆症患者及其护理人员具有全面益处。在本文中，我们描述了一项针对10名痴呆症患者的无薪护理人员的试点摄影报道项目的结果，涉及护理人员在该项目中的经历及其心理健康状况。护理人员参加了由一名专业摄影记者主持的四场课程，该记者教授摄影原理。在课程之间，护理人员使用项目提供的数码相机拍摄代表护理对他们意味着什么的照片。在课程期间，指导穿插着对护理人员照片的讨论。在项目前后测量护理人员的负担和抑郁症状。定性探索包括对课程的观察、查看护理人员的照片以及记录护理人员的相关评论。对于有项目前后数据的参与者，护理人员的负担显著降低（P = 0.037）。对于有项目前后数据的护理人员，抑郁症状无显著下降（P = 0.066）。护理人员的负担和抑郁症状实现了具有临床意义的减轻。定性研究结果突出了护理人员对项目、 facilitator（此处可能有误，推测为“主持人”之类的意思）和其他参与者的强烈参与，以及对他们经历多个方面的反思。这种干预帮助护理人员创造性地传达了他们的经历，并证明了在改善护理人员心理健康方面的有效性。
