Pons-Vigués Mariona, Pujol-Ribera Enriqueta, Berenguera Anna, Violán Concepción, Mahtani-Chugani Vinita
Institut Universitari d'Investigació en Atenció Primària Jordi Gol, Barcelona, España; Universitat Autònoma de Barcelona, Bellaterra (Cerdanyola del Vallès), Barcelona, España; Facultat d'Infermeria, Universitat de Girona, Girona, España.
Institut Universitari d'Investigació en Atenció Primària Jordi Gol, Barcelona, España; Universitat Autònoma de Barcelona, Bellaterra (Cerdanyola del Vallès), Barcelona, España; Facultat d'Infermeria, Universitat de Girona, Girona, España.
Gac Sanit. 2019 Nov-Dec;33(6):536-546. doi: 10.1016/j.gaceta.2018.05.011. Epub 2018 Oct 15.
Explore the strengths, weaknesses, opportunities and threats (SWOT) for development of public involvement in research by Institut Universitari d'Investigació en Atenció Primària Jordi Gol (IDIAPJGol) according to primary health care researchers in Catalonia (Spain).
Cross-sectional study carried out in 2017 with 36 primary health care research teams accredited by IDIAPJGol and its management staff. An open questionnaire (paper and online) was designed and piloted to develop a SWOT technique, and 65 answers were obtained (14 in paper and 51 online). A thematic content analysis was carried out.
Most informants consider public involvement in research a useful, innovative, viable and essential strategy, but it requires a change of mentality and a move away from the hierarchical paradigm. It can be difficult to execute and can complicate studies. They are concerned about which citizens should be involve, how to select them, possible conflicts of interest and training needs. The main proposals for its implementation are to disseminate previous strategies, encourage motivation and synergies among citizens, researchers and institutions, and to clarify the roles of the actors involved. IDIAPJGol should develop recommendations for the public involvement in research, encourage their inclusion, have a mentor and advise the research teams.
Despite the challenges, developing public involvement in research in primary health care is essential and feasible, what it is more should be based on a participatory strategy with all actors. The citizens can participate in any kind of design and phase of the research, adapting each project, being the primary health care a privileged area to develop the public involvement in research.
根据西班牙加泰罗尼亚的初级卫生保健研究人员，探究乔迪·戈尔初级卫生保健研究所（IDIAPJGol）在公众参与研究发展方面的优势、劣势、机遇和威胁（SWOT）。
2017年开展横断面研究，对象为IDIAPJGol认可的36个初级卫生保健研究团队及其管理人员。设计并试行一份开放式问卷（纸质和在线）以开发SWOT技术，共获得65份答案（14份纸质和51份在线）。进行了主题内容分析。
大多数受访者认为公众参与研究是一项有用、创新、可行且必不可少的策略，但这需要思维转变并摆脱等级范式。实施起来可能困难，且会使研究复杂化。他们担心应让哪些公民参与、如何选择他们、可能存在的利益冲突以及培训需求。其实施的主要建议是传播先前的策略，鼓励公民、研究人员和机构之间的积极性和协同作用，并明确相关行为者的角色。IDIAPJGol应制定公众参与研究的建议，鼓励将其纳入，设立导师并为研究团队提供建议。
尽管存在挑战，但在初级卫生保健中发展公众参与研究至关重要且可行，更应基于与所有行为者的参与式策略。公民可参与研究的任何设计和阶段，根据每个项目进行调整，初级卫生保健是发展公众参与研究的特权领域。
