特定疾病患者门户在镰状细胞病青少年中的可接受性和可行性
Acceptability and Feasibility of a Disease-specific Patient Portal in Adolescents With Sickle Cell Disease.
作者信息
Kidwell Katherine M, Peugh James, Westcott Emilie, Nwankwo Cara, Britto Maria T, Quinn Charles T, Crosby Lori E
机构信息
Division of Behavioral Medicine.
Center for Innovation in Chronic Disease Care.
出版信息
J Pediatr Hematol Oncol. 2019 Oct;41(7):561-567. doi: 10.1097/MPH.0000000000001341.
Abstract
OBJECTIVE
To examine the acceptability, feasibility, and efficacy of a health care portal.
OBSERVATIONS
Adolescents and young adults with sickle cell disease were taught how to use sickle cell disease conditions page in MyChart and completed questionnaires at baseline, postintervention (T2, 6 wk after baseline) and after 3 months (T3). In total, 44 participants (M age=18.82, SD=2.72) viewed an average of 58.07 pages from T1 to T2. The portal was highly accepted (90.32%). Efficacy data indicated that portal use was associated with improved patient-provider communication.
CONCLUSIONS
Electronic portals are promising tools for improving medical self-management.
摘要
目的
研究一个医疗保健门户网站的可接受性、可行性和有效性。
观察结果
对患有镰状细胞病的青少年和青年成年人进行了如何使用MyChart中镰状细胞病情况页面的培训，并在基线、干预后（T2，基线后6周）和3个月后（T3）完成问卷调查。共有44名参与者（平均年龄=18.82岁，标准差=2.72）从T1到T2平均浏览了58.07个页面。该门户网站获得了高度认可（90.32%）。有效性数据表明，使用该门户网站与改善患者与医疗服务提供者之间的沟通相关。
结论
电子门户网站是改善医疗自我管理的有前景的工具。
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