Lewis Dana
1 OpenAPS, Seattle, WA, USA.
J Diabetes Sci Technol. 2019 Jul;13(4):790-793. doi: 10.1177/1932296818808307. Epub 2018 Oct 22.
People with diabetes have been experimenting and self-modifying diabetes devices and technologies for many decades, in order to achieve the best possible quality of life and improving their long-term outcomes. There are now hundreds of individuals using DIY closed loop systems globally. They work similarly to commercial systems at a basic level, automatically adjusting and controlling insulin dosing, but are different in terms of transparency, access, customization, and usability. The potential downsides to DIY closed looping include varying responses from individual HCPs, who may be concerned about their own liability. However, initial outcomes from this self-selected community (including adult and pediatric populations globally) have been positive. There have now been several studies documenting improvements in A1c, time in range, and other outcomes such as quality-of-life benefits. More studies on quality-of-life improvements and more collaboration between companies and the community are recommended.
几十年来,糖尿病患者一直在试验和自行改进糖尿病设备及技术,以实现尽可能好的生活质量并改善长期预后。目前全球有数百人在使用自制闭环系统。这些系统在基本层面上与商业系统类似,能自动调整和控制胰岛素剂量,但在透明度、可及性、定制性和易用性方面有所不同。自制闭环系统的潜在不利之处包括不同的医疗保健专业人员(HCP)可能有不同反应,他们可能担心自身责任。然而,这个自行选择的群体(包括全球的成人和儿童患者)的初步结果是积极的。现在已有多项研究记录了糖化血红蛋白(A1c)、血糖达标时间的改善以及其他结果,如生活质量的提升。建议开展更多关于生活质量改善的研究,并加强公司与该群体之间的合作。