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父亲对孩子自闭症诊断的认知取向:一项扎根理论研究。

Fathers' Orientation to their Children's Autism Diagnosis: A Grounded Theory Study.

作者信息

Hannon Michael D, Hannon LaChan V

机构信息

Department of Counseling and Educational Leadership, College of Education and Human Services, Montclair State University, 3190 University Hall, 1 Normal Avenue, Montclair, NJ, 07043, USA.

Program in Teacher Education/Teacher Development, College of Education and Human Services, Montclair State University, Montclair, USA.

出版信息

J Autism Dev Disord. 2017 Jul;47(7):2265-2274. doi: 10.1007/s10803-017-3149-6.

Abstract

Sixteen fathers of individuals with autism were interviewed to develop a grounded theory explaining how they learned about their children's autism diagnosis. Results suggest the orientation process entails at least two phases: orienting oneself and orienting others. The orienting oneself phase entailed fathers having suspicion of developmental differences, engaging in research and education activities, having their children formally evaluated; inquiring about their children's prognosis, and having curiosities about autism's etiology. The orienting others phase entailed orientating family members and orienting members of their broader communities. Recommendations for responsive service provision, support for fathers, and future research are offered.

摘要

对16位自闭症患者的父亲进行了访谈,以建立一个扎根理论,解释他们是如何得知孩子的自闭症诊断的。结果表明,适应过程至少包括两个阶段:自我适应和他人适应。自我适应阶段包括父亲怀疑孩子有发育差异、参与研究和教育活动、让孩子接受正式评估、询问孩子的预后情况以及对自闭症的病因感到好奇。他人适应阶段包括向家庭成员和更广泛社区的成员进行适应。文中还提供了关于响应性服务提供、对父亲的支持以及未来研究的建议。

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