a Gender and Health Research Unit , South African Medical Research Council , Cape Town , South Africa.
b Women's Health Research Unit, School of Public Health and Family Medicine , University of Cape Town , Cape Town , South Africa.
Glob Public Health. 2019 May;14(5):737-749. doi: 10.1080/17441692.2018.1542015. Epub 2018 Nov 4.
Globally, women with disabilities experience heightened and unique forms of violence compared to men with disabilities and women without disabilities. Yet formalised guidelines for their inclusion in gender-based violence (GBV) research is lacking. This paper draws on ethical guidelines for researching violence against women, and studies on the ethicality of including people with disabilities in research, to advocate for women with disabilities' inclusion and safety in GBV research. Reflecting on lessons from a qualitative study on violence against women living with disabilities in South Africa, the paper considers what could be of value for GBV researchers and ethics review committees in low-middle income countries (LMICs). It aims to stimulate debate around the integration of reasonable accommodation, accessibility, and equal participation of women with disabilities in planning and conducting ethical GBV research. The paper recommends that considerations are practically applied and tested in other LMICs, and thereafter critiqued in consultation with a range of stakeholders and women with disabilities, to enhance best practice and form a basis for developing guidelines for undertaking ethical and inclusive GBV research in LMICs.
在全球范围内,与残疾男性和非残疾女性相比,残疾女性经历着更为突出和独特的暴力形式。然而,在将残疾女性纳入基于性别的暴力(GBV)研究方面,缺乏正式的指导方针。本文借鉴了研究针对妇女的暴力行为的伦理准则,以及关于将残疾人纳入研究的伦理问题的研究,倡导残疾女性在 GBV 研究中得到包容和安全。本文通过反思在南非开展的一项关于残疾妇女遭受暴力的定性研究中的经验教训,考虑了对于中低收入国家(LMICs)的 GBV 研究人员和伦理审查委员会有价值的内容。本文旨在围绕合理便利、无障碍和残疾女性平等参与规划和开展符合伦理的 GBV 研究等方面展开讨论。本文建议在其他 LMICs 中实际应用和测试这些考虑因素,并在与一系列利益相关者和残疾女性协商后进行批评,以加强最佳实践并为制定在 LMICs 中进行符合伦理和包容的 GBV 研究的指南奠定基础。