Robinson Sally, Foley Kristen, Moore Tim, Valentine Kylie, Burton Jala, Marshall Amy, O'Donnell Melissa, Brebner Chris
College of Nursing and Health Sciences, Flinders University, PO Box 2100, Adelaide, SA, 5001 South Australia.
Australian Catholic University, Melbourne, Australia.
J Fam Violence. 2023 Jan 28:1-14. doi: 10.1007/s10896-023-00496-9.
The perspectives of children and young people with disability who experience domestic and family violence are under-researched, impeding the development of approaches that meet their needs. Knowledge gaps stem from the layered discursive positioning of disability, childhood/youth, or domestic and family violence in addition to the methodological, ethical and pragmatic complexity of research needed to understand their priorities and be attuned to their lived experience. This article explores methodological, ethical and practical challenges to centring their voices in research about domestic and family violence.
A conceptual framework of feminist disability theory and intersectionality informed our co-designed research, across three phases: (1) quantitative large-scale data linkage and case file analysis; (2) qualitative research with children and young people, their families and service providers and (3) stakeholder engagement workshops.
We reflect on how our research was able to prioritise the contextual agency of children and young people with disability, ways it could not, and other constraints.
Children and young people with disability experiencing domestic and family violence hold an expert and unique vantage point on what happens to them. Amplifying their priorities for directing policy and organisational change requires more of researchers in terms of methods, but also more flexibility in how projects are funded to enable creativity and innovation. We call for collective attention to frameworks for supported decision-making and child ethics to progress inclusive research which recognises the importance of participation for children and young people with disability.
经历家庭暴力的残疾儿童和青少年的观点研究不足，这阻碍了满足他们需求的方法的发展。知识空白源于残疾、童年/青年或家庭暴力的分层话语定位，此外还源于理解他们的优先事项并适应他们的生活经历所需研究的方法、伦理和实际复杂性。本文探讨了在关于家庭暴力的研究中以他们的声音为中心所面临的方法、伦理和实际挑战。
女权主义残疾理论和交叉性的概念框架为我们共同设计的研究提供了指导，该研究分为三个阶段：（1）大规模定量数据关联和案例文件分析；（2）对儿童和青少年、他们的家庭以及服务提供者进行定性研究；（3）利益相关者参与研讨会。
我们反思了我们的研究如何能够优先考虑残疾儿童和青少年的情境能动性，哪些方面未能做到，以及其他限制因素。
经历家庭暴力的残疾儿童和青少年对发生在他们身上的事情拥有专业且独特的观点。要在指导政策和组织变革方面突出他们的优先事项，不仅对研究人员的方法有更高要求，而且在项目资金资助方式上也需要更大的灵活性，以促进创造力和创新。我们呼吁集体关注支持性决策框架和儿童伦理，以推进包容性研究，承认残疾儿童和青少年参与的重要性。
