O'Sullivan Anna, Alvariza Anette, Öhlen Joakim, Håkanson Cecilia
Department of Health Care Sciences, Palliative Research Centre, Ersta Sköndal Bräcke University College, P.O. Box 11189, SE-100 61 Stockholm, Sweden.
Capio Palliative Care Unit, Dalen Hospital, Åstorpsringen 6, Enskededalen, SE-121 87 Stockholm, Sweden.
Healthcare (Basel). 2018 Nov 6;6(4):130. doi: 10.3390/healthcare6040130.
Studies evaluating the end-of-life care for longer periods of illness trajectories and in several care places are currently lacking. This study explored bereaved family members' satisfaction with care during the last three months of life for people with advanced illness, and associations between satisfaction with care and characteristics of the deceased individuals and their family members.
A cross-sectional survey design was used. The sample was 485 family members of individuals who died at four different hospitals in Sweden.
Of the participants, 78.7% rated the overall care as high. For hospice care, 87.1% reported being satisfied, 87% with the hospital care, 72.3% with district/county nurses, 65.4% with nursing homes, 62.1% with specialized home care, and 59.6% with general practitioners (GPs). Family members of deceased persons with cancer were more likely to have a higher satisfaction with the care. A lower satisfaction was more likely if the deceased person had a higher educational attainment and a length of illness before death of one year or longer.
The type of care, diagnoses, length of illness, educational attainment, and the relationship between the deceased person and the family member influences the satisfaction with care.
目前缺乏针对较长病程轨迹以及在多个护理场所的临终关怀的研究。本研究探讨了丧亲家庭成员对晚期疾病患者生命最后三个月护理的满意度，以及护理满意度与逝者及其家庭成员特征之间的关联。
采用横断面调查设计。样本为在瑞典四家不同医院去世的患者的485名家庭成员。
在参与者中，78.7%对整体护理评价较高。对于临终关怀，87.1%表示满意，医院护理为87%，地区/县护士护理为72.3%，养老院护理为65.4%，专业家庭护理为62.1%，全科医生（GP）护理为59.6%。癌症逝者的家庭成员对护理的满意度更高。如果逝者教育程度较高且死前患病时长为一年或更长时间，则满意度较低。
护理类型、诊断、病程长度、教育程度以及逝者与家庭成员之间的关系会影响护理满意度。
