1 University of Maryland, Baltimore, USA.
2 The Catholic University of America, USA.
Autism. 2019 Jul;23(5):1300-1310. doi: 10.1177/1362361318805368. Epub 2018 Nov 9.
Although the number of Syrians affected by the civil war rises, little work has been done to address the needs of Syrian refugee children with autism spectrum disorder. This research aimed to test the feasibility and acceptability of a culturally sensitive intervention developed specifically for children with autism spectrum disorder affected by trauma. Local partners advised the program team on cultural norms. Nine parents and 11 teachers were recruited to participate in 12-week parent-teacher cooperatives in a large Turkish city. We used qualitative methods to analyze interviews with each participant after intervention completion. A total of 14 participants completed the program (70%). All interviewees were women and Syrian refugees. Local political events, transportation costs and safety, and illnesses impacted attrition and attendance. All participants were satisfied with program content, including gains in autism knowledge, behavior management skills, and social support. Program-related challenges included applying skills to nonverbal children. The majority of participants made recommendations for program improvement, including a need for services outside urban areas. Flexible program delivery methods, including online options, might better accommodate participants unable to travel due to distance, political unrest, or safety. More research is needed to rigorously test program outcomes and to evaluate efforts to train local program leaders.
尽管受内战影响的叙利亚人数不断增加,但针对受创伤影响的自闭症谱系障碍的叙利亚难民儿童的需求,几乎没有开展任何工作。本研究旨在测试专门为自闭症谱系障碍儿童开发的具有文化敏感性的干预措施的可行性和可接受性。当地合作伙伴就文化规范为项目团队提供了建议。在土耳其的一个大城市,招募了 9 名家长和 11 名教师参加为期 12 周的家长-教师合作。在干预完成后,我们使用定性方法分析了每位参与者的访谈。共有 14 名参与者(70%)完成了该项目。所有受访者均为女性,且为叙利亚难民。当地政治事件、交通成本和安全以及疾病影响了参与者的流失率和出勤率。所有参与者均对项目内容表示满意,包括自闭症知识、行为管理技能和社会支持方面的收获。与项目相关的挑战包括将技能应用于非言语儿童。大多数参与者对项目改进提出了建议,包括需要在城市以外地区提供服务。灵活的项目交付方式,包括在线选项,可能更适合因距离、政治动荡或安全原因无法出行的参与者。需要进一步开展研究,以严格测试项目成果,并评估培训当地项目负责人的努力。