Castro Eva Marie, Gielen Peter, Van Wanseele Carine
Trefpunt Zelfhulp vzw, Fakultät Sozialwissenschaft, KU Leuven, Parkstraat 45 bus 3608, 3000, Leuven, Belgien.
Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2019 Jan;62(1):49-55. doi: 10.1007/s00103-018-2848-2.
In 2018, around 1500 self-help groups existed in the Belgian region of Flanders, dealing with almost 200 different diseases or problems. Most have existed for 25 to 35 years, with new initiatives added annually. The first part of this article describes the development of self-help groups and patient participation in Flanders. The second part discusses the legal framework for the participation of patient associations at the micro-, meso-, and macrolevel. The third section describes two current practical examples of patient participation in the health system: the "self-help-friendly hospital" and "the integration of experts by experience in hospitals" with initial interim results. Finally, we discuss development and growth opportunities, as well as needs of self-help groups and patient associations and their support agencies and umbrella associations. More support for self-help groups and increased recognition of their achievements can promote structural forms of cooperation with the professional health system and boost patient participation.
2018年，比利时弗拉芒地区约有1500个自助团体，涉及近200种不同的疾病或问题。大多数团体已存在25至35年，每年都有新的倡议加入。本文第一部分描述了弗拉芒地区自助团体的发展以及患者参与情况。第二部分讨论了患者协会在微观、中观和宏观层面参与的法律框架。第三部分介绍了目前患者参与卫生系统的两个实际例子：“自助友好型医院”和“将有经验的专家融入医院”以及初步的中期结果。最后，我们讨论了自助团体和患者协会及其支持机构和伞式协会的发展与增长机会以及需求。对比自助团体给予更多支持并提高对其成就的认可，能够促进与专业卫生系统的结构性合作形式，并推动患者参与。
