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[互助与患者参与:奥地利的当前发展情况]

[Mutual self-help and patient participiation: current developments in Austria].

作者信息

Forster Rudolf, Rojatz Daniela

机构信息

Institut für Soziologie, Universität Wien, Wien, Österreich.

Gesundheit Österreich GmbH, Stubenring 6, 1010, Wien, Österreich.

出版信息

Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2019 Jan;62(1):56-63. doi: 10.1007/s00103-018-2852-6.

Abstract

In Austria, health-related self-help groups and organisations have been growing continuously over the past decades. They are increasingly demanding to be accepted as partners of the professional health system and to be involved in health policy decisions.Practice shows that "self-help friendly hospitals" are widespread in Austria. Although some self-help groups/organisations have gained access to health policy committees, research indicates that they find the system unresponsive to their interests. Public support for self-help organisations is particularly lacking at the national level as are conducive conditions for collective patient participation.A recent initiative by the Social Health Insurance Funds, the Ministry of Health and the National Health Promotion Agency seeks to tackle these problems. A plan for public support of self-help groups/organisations, primarily those operating at the national level, has been developed in collaboration with representatives of self-help organisations. It provides financial support for the activities of indication-specific self-help organisations at regional and national levels aiming at strengthening their autonomy. In addition, two institutions were founded: an umbrella organisation of indication-specific self-help organisations and a professional national support agency. The implementation of the new concept offers opportunities for closer cooperation between system stakeholders and self-help groups/organisations, and a new stimulus for patient participation is expected from these two new institutions.

摘要

在奥地利,与健康相关的自助团体和组织在过去几十年中持续增长。它们越来越要求被接纳为专业医疗系统的合作伙伴,并参与健康政策决策。实践表明,“对自助友好的医院”在奥地利很普遍。尽管一些自助团体/组织已进入健康政策委员会,但研究表明,它们发现该系统对其利益无动于衷。在国家层面,尤其缺乏对自助组织的公众支持以及有利于患者集体参与的条件。社会健康保险基金、卫生部和国家健康促进机构最近发起了一项倡议,旨在解决这些问题。已与自助组织的代表合作制定了一项公共支持自助团体/组织的计划,主要是那些在国家层面运作的团体/组织。该计划为区域和国家层面特定适应症自助组织的活动提供财政支持,旨在增强其自主性。此外,还成立了两个机构:一个特定适应症自助组织的伞式组织和一个专业的国家支持机构。新概念的实施为系统利益相关者与自助团体/组织之间更密切的合作提供了机会,预计这两个新机构将为患者参与带来新的推动力。

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