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保持我们的完整:承认非裔美国乳腺癌幸存者及其社会支持系统的能动性。

Keeping us all whole: Acknowledging the agency of African American breast cancer survivors and their systems of social support.

机构信息

Africana Studies Department, San Francisco State University, San Francisco, CA, USA.

Asian American Studies, San Francisco State University, 1600 Holloway, EP 103, San Francisco, CA, 94132, USA.

出版信息

Support Care Cancer. 2019 Jul;27(7):2625-2632. doi: 10.1007/s00520-018-4538-x. Epub 2018 Nov 23.

DOI:10.1007/s00520-018-4538-x
PMID:30470890
Abstract

While all cancer patients face a bewildering array of treatments, side effects, and emotions, several researchers have shown that African American women with breast cancer experience greater stress and burdens because of unmet supportive needs associated with psychological distress, financial distress, and lower physical/functional well-being. Social support has been shown to improve health outcomes for African American breast cancer patients. The purpose of this paper is to understand the meaning of social support among African American women diagnosed with breast cancer. A total of 47 African American women with breast cancer participated in the in-depth qualitative interviews. Key findings indicate that social support was received in the context of the stability of the extended family network. Moreover, social support was received in the context of distributing the social support received among many members in their personal networks and that social support was only received on patient's own terms. The findings of this paper provide an understanding to the inter-relational and cultural meanings of receiving support by diverse cancer patients. In addition, the findings of this paper have implications for health care professionals working with African American breast cancer patients in understanding how social support can be received.

摘要

虽然所有癌症患者都面临着令人困惑的治疗方法、副作用和情绪,但有几位研究人员表明,非裔美国乳腺癌女性由于与心理困扰、经济困扰和较低的身体/功能健康相关的未满足的支持需求而经历更大的压力和负担。社会支持已被证明可以改善非裔美国乳腺癌患者的健康结果。本文旨在了解被诊断患有乳腺癌的非裔美国女性对社会支持的含义。共有 47 名非裔美国乳腺癌女性参与了深入的定性访谈。主要发现表明,社会支持是在扩展家庭网络稳定的背景下获得的。此外,社会支持是在其个人网络中的许多成员之间分配所获得的社会支持的背景下获得的,并且仅在患者自己的条件下获得社会支持。本文的研究结果提供了对不同癌症患者接受支持的相互关系和文化意义的理解。此外,本文的研究结果对与非裔美国乳腺癌患者合作的医疗保健专业人员具有重要意义,他们可以了解如何接受社会支持。

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本文引用的文献

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Negative psychological consequences of breast cancer among recently diagnosed ethnically diverse women.乳腺癌对新近确诊的不同族裔女性的负面心理影响。
Psychooncology. 2017 Dec;26(12):2245-2252. doi: 10.1002/pon.4456. Epub 2017 Jun 16.
2
Postdiagnosis social networks and breast cancer mortality in the After Breast Cancer Pooling Project.乳腺癌合并项目中诊断后社交网络与乳腺癌死亡率
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Understanding Supportive Care Factors Among African American Breast Cancer Survivors.
社会干预对子宫内膜癌治疗和复发期间支持的研究方案(SISTER):一项社区参与的全国随机试验。
J Comp Eff Res. 2024 Mar;13(3):e230159. doi: 10.57264/cer-2023-0159. Epub 2024 Feb 13.
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"We're in this together": Perceived effects of breast cancer on African American survivors' marital relationships.“我们同舟共济”:乳腺癌对非裔美国幸存者婚姻关系的感知影响
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5
Intersectionality Impacts Survivorship: Identity-Informed Recommendations to Improve the Quality of Life of African American Breast Cancer Survivors in Health Promotion Programming.交叉性问题对生存状况的影响:为改善健康促进项目中非裔美国乳腺癌幸存者的生活质量而提出的基于身份认同的建议。
Int J Environ Res Public Health. 2022 Oct 6;19(19):12807. doi: 10.3390/ijerph191912807.
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Factors affecting timely breast cancer treatment among black women in a high-risk urban community: a qualitative study.影响高危城市社区中黑人女性及时进行乳腺癌治疗的因素:一项定性研究。
BMC Womens Health. 2022 Aug 21;22(1):354. doi: 10.1186/s12905-022-01938-0.
7
Healthcare Predictors of Information Dissemination About Genetic Risks.遗传风险信息传播的医疗保健预测因素。
Cancer Control. 2022 Jan-Dec;29:10732748221104666. doi: 10.1177/10732748221104666.
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Psychometric validation of the Chinese version of the PROMIS Social Relationships Short Forms.中文版本 PROMIS 社会关系简短形式的心理测量学验证。
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Psychosocial protective interventions associated with a better quality of life and psychological wellbeing for African American/Black female breast cancer survivors: an integrative review.与提高非裔美国/黑人女性乳腺癌幸存者生活质量和心理健康相关的社会心理保护干预措施:一项综合评价。
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J Transcult Nurs. 2018 Jan;29(1):21-29. doi: 10.1177/1043659616670713. Epub 2016 Sep 30.
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Understanding racial differences in health-related quality of life in a population-based cohort of breast cancer survivors.了解基于人群的乳腺癌幸存者队列中与健康相关的生活质量的种族差异。
Breast Cancer Res Treat. 2016 Oct;159(3):535-43. doi: 10.1007/s10549-016-3965-y. Epub 2016 Sep 1.
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Changes in social support predict emotional well-being in breast cancer survivors.社会支持的变化预示着乳腺癌幸存者的情绪健康。
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Exploring Coping Strategies Among Young Asian American Women Breast Cancer Survivors.探索年轻亚裔美国乳腺癌幸存者的应对策略。
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