College of Medicine, University of Tennessee Health Science Center, Memphis, Tennessee.
Rollins School of Public Health, Emory University, Atlanta, Georgia.
Psychooncology. 2019 Mar;28(3):570-576. doi: 10.1002/pon.4979. Epub 2019 Feb 5.
Social support is a critical component of breast cancer care and is associated with clinical and quality of life outcomes. Significant health disparities exist between Black and White women with breast cancer. Our study used qualitative methods to explore the social support needs of Black and White women with hormone receptor-positive breast cancer on adjuvant endocrine therapy (AET).
We conducted four focus group (FG) interviews (N = 28), stratified by race (ie, Black and White) and time on AET. FGs were audiotaped, transcribed, and analyzed according to conventions of thematic analysis.
Participants noted the importance of having their informational and emotional social support needs met by friends and family members. White participants reported support provided by others with breast cancer was crucial; Black women did not discuss other survivors as part of their networks. Notably, both White and Black participants used the FG environment to provide experiential social support to each other.
White participants noted that having other breast cancer survivors in their support network was essential for meeting their social support needs. However, Black participants did not reference other breast cancer survivors as part of their networks. Cancer centers should consider reviewing patients' access to experiential support and facilitate opportunities to connect women in the adjuvant phase.
社会支持是乳腺癌护理的重要组成部分,与临床和生活质量结果相关。患有乳腺癌的黑人和白人女性之间存在显著的健康差异。我们的研究使用定性方法探讨了激素受体阳性乳腺癌接受辅助内分泌治疗(AET)的黑人和白人女性的社会支持需求。
我们进行了四项焦点小组(FG)访谈(N=28),按种族(即黑人和白人)和 AET 时间进行分层。FG 被录音、转录,并根据主题分析的惯例进行分析。
参与者指出,朋友和家人满足他们的信息和情感社会支持需求非常重要。白人参与者报告说,来自其他乳腺癌患者的支持至关重要;黑人女性没有将其他幸存者作为其网络的一部分进行讨论。值得注意的是,白人和黑人参与者都利用 FG 环境为彼此提供经验性社会支持。
白人参与者指出,在支持网络中有其他乳腺癌幸存者对满足他们的社会支持需求至关重要。然而,黑人参与者没有将其他乳腺癌幸存者作为其网络的一部分。癌症中心应考虑审查患者获得经验支持的机会,并为辅助阶段的女性提供联系机会。