School of Healthcare, University of Leeds, Leeds, UK
School of Healthcare, University of Leeds, Leeds, UK.
BMJ Support Palliat Care. 2019 Sep;9(3):235-244. doi: 10.1136/bmjspcare-2018-001646. Epub 2018 Dec 4.
Adolescents and young adults with life-limiting or life-threatening conditions are often socially isolated because of the demands of their illness. Although adolescents and young adults have a noticeable online and social media presence, their motivations for using social media remain unclear. This article aims to summarise empirical research undertaken about how and why social media is used by adolescents and young adults with life-limiting or life-threatening conditions.
An integrative literature review was undertaken. Key healthcare research databases including CINHAL, MEDLINE and PSYCHINFO were searched for empirical studies reporting the use of social media by adolescents and young adults with life-limiting or life-threatening conditions. Fifteen articles met the inclusion criteria; included articles were quality appraised and a thematic synthesis undertaken to identify key themes.
The reasons why adolescents and young adults with life-limiting or life-threatening conditions use social media are diverse, with differences relating to age and gender. However, this population in general uses social media to connect with others who have similar lived experiences.
Social media platforms can be useful adjuncts to the care of adolescents and young adults with life-limiting or life-threatening conditions. However, current evidence is dominated by studies on social media use by adolescents and young adults with cancer. More research is required to gain a holistic understanding of how and why social media is used by this population and its perceived benefits and limitations.
患有危及生命或生命有限的疾病的青少年和年轻人往往由于疾病的需求而被社会孤立。尽管青少年和年轻人在网络和社交媒体上的存在感显著，但他们使用社交媒体的动机仍不清楚。本文旨在总结有关患有危及生命或生命有限的疾病的青少年和年轻人如何以及为何使用社交媒体的实证研究。
进行了综合文献回顾。检索了 CINHAL、MEDLINE 和 PSYCHINFO 等主要医疗保健研究数据库，以寻找报告患有危及生命或生命有限的疾病的青少年和年轻人使用社交媒体的实证研究。符合纳入标准的有 15 篇文章；对纳入的文章进行了质量评估，并进行了主题综合分析，以确定关键主题。
患有危及生命或生命有限的疾病的青少年和年轻人使用社交媒体的原因多种多样，年龄和性别差异相关。然而，这一人群通常使用社交媒体与具有相似生活经历的人建立联系。
社交媒体平台可以成为患有危及生命或生命有限的疾病的青少年和年轻人护理的有用辅助手段。然而，目前的证据主要集中在患有癌症的青少年和年轻人使用社交媒体的研究上。需要进一步研究，以全面了解这一人群使用社交媒体的方式、原因以及其感知到的益处和局限性。
