St Richards Hospital,Chichester,UK.
Centre for Dementia Studies,Brighton and Sussex Medical School,Brighton,UK.
Int Psychogeriatr. 2019 Jun;31(6):869-876. doi: 10.1017/S1041610218001357. Epub 2018 Dec 6.
ABSTRACTBackground:There is a need to improve dementia education to prepare future generations of healthcare professionals to deal with the increasing challenges they will face. Time for Dementia is an innovative undergraduate education program for medical, nursing, and paramedic students in the south of England. Success of the program is dependent upon the participation of families (people with dementia and their carers). This qualitative study seeks to explore the motivation and experiences of the families taking part in the program.
A topic guide was developed to understand factors influencing motivation and retention. A purposeful sample of participant families, who had at least 12 months of involvement in the program, were selected from a cohort of 282 families and were invited to take part in an in-depth qualitative interview. Interviews were audio recorded, transcribed verbatim, and analyzed using thematic analysis. This was subsequently refined in an on-going process of analysis aided by the use of Nvivo 11. Interviewing stopped when thematic saturation was reached.
Eighteen families took part in an in-depth qualitative interviews. Four themes were identified from the analysis. These themes were motivators, value to family, value to the person with dementia, and student factors.
This study identifies underpinning factors that motivate families to join dementia education programs and the impact of such programs upon them. We found that engagement in such programs can have therapeutic benefits to participants, and do not cause harm. These findings can be used to strengthen recruitment and enhance family involvement in similar programs.
摘要背景：需要加强痴呆症教育，让未来的医疗保健专业人员为应对他们将面临的日益增加的挑战做好准备。“痴呆时间”是一项针对英格兰南部医学生、护理学生和护理人员的创新本科教育计划。该计划的成功取决于家庭（痴呆症患者及其照顾者）的参与。本定性研究旨在探讨参与该计划的家庭的动机和经验。方法：制定了一个主题指南，以了解影响动机和保留率的因素。从 282 个家庭的队列中选择了至少参与该计划 12 个月的参与者家庭作为目的抽样，并邀请他们参加深入的定性访谈。访谈进行了录音、逐字记录，并使用主题分析进行分析。随后，借助 Nvivo 11 对分析进行了持续的改进。当达到主题饱和度时，访谈就停止了。结果：18 个家庭参加了深入的定性访谈。从分析中确定了四个主题。这些主题是动机、对家庭的价值、对痴呆症患者的价值以及学生因素。结论：这项研究确定了促使家庭参加痴呆症教育计划的基本因素以及这些计划对他们的影响。我们发现，参与此类计划对参与者有治疗益处，不会造成伤害。这些发现可以用于加强招募并增强类似计划中家庭的参与度。
