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被诊断为无症状性骨质疏松症的女性的需求与医疗保健系统所提供的服务之间的差距:一项定性研究。

The gap between women's needs when diagnosed with asymptomatic osteoporosis and what is provided by the healthcare system: A qualitative study.

作者信息

Ravn Jakobsen Pernille, Hermann Anne Pernille, Søendergaard Jens, Kock Wiil Uffe, Myhre Jensen Charlotte, Clemensen Jane

机构信息

University College South Denmark, Haderslev, Denmark.

Centre for Innovative Medical Technology, University of Southern Denmark & Odense University Hospital, Odense, Denmark.

出版信息

Chronic Illn. 2021 Mar;17(1):3-16. doi: 10.1177/1742395318815958. Epub 2018 Dec 10.

Abstract

OBJECTIVES

Women diagnosed with asymptomatic osteoporosis need better support to understand the implications of the condition and how to practice self-management in their daily lives. In contrast, physicians report that asymptomatic osteoporosis is not a serious chronic condition and do not pay much attention to the condition compared to other chronic conditions. Therefore, the aim of this study was to investigate the gap between women's needs, when diagnosed with asymptomatic osteoporosis, and what is provided by the healthcare system.

METHODS

A secondary analysis of semi-structured interviews with 17 women newly diagnosed with asymptomatic osteoporosis was conducted and combined with semi-structured interviews with six physicians. Giorgi's descriptive phenomenological method was used in the analysis.

RESULTS

Two overall themes were identified: different perceptions of asymptomatic osteoporosis and discrepancies in the osteoporosis consultation. Habermas was used as a theoretical approach to discuss the findings.

DISCUSSION

We discuss that physicians pay too much attention to the objective world and highlight that there is a need for better inclusion of women's subjective and social worlds, to enable mutual understanding and communicative action in the osteoporosis consultation. This would lead to treatment decisions based on women's needs and support women in their self-management of osteoporosis.

摘要

目的

被诊断为无症状骨质疏松症的女性需要更好的支持,以了解该病症的影响以及如何在日常生活中进行自我管理。相比之下,医生报告称无症状骨质疏松症并非严重的慢性病,与其他慢性病相比,对该病症的关注较少。因此,本研究的目的是调查被诊断为无症状骨质疏松症的女性的需求与医疗保健系统所提供的内容之间的差距。

方法

对17名新诊断为无症状骨质疏松症的女性进行的半结构化访谈进行了二次分析,并与对6名医生的半结构化访谈相结合。分析采用了 Giorgi 的描述性现象学方法。

结果

确定了两个总体主题:对无症状骨质疏松症的不同认知以及骨质疏松症咨询中的差异。使用哈贝马斯的理论方法来讨论研究结果。

讨论

我们讨论了医生过于关注客观世界,并强调需要更好地纳入女性的主观和社会世界,以便在骨质疏松症咨询中实现相互理解和沟通行动。这将导致基于女性需求的治疗决策,并支持女性进行骨质疏松症的自我管理。

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