Pessotti Carla Fabiana Carletti, Fonseca Lineu Corrêa, Tedrus Gloria Maria de Almeida Souza, Laloni Diana Tosello
Psychologist, Master's Degree in Health Sciences, Pontifícia Universidade Católica de Campinas, Campinas, SP, Brazil.
Professor of the Graduate Program in Health Sciences, Pontifícia Universidade Católica de Campinas, Campinas, SP, Brazil.
Dement Neuropsychol. 2018 Oct-Dec;12(4):408-414. doi: 10.1590/1980-57642018dn12-040011.
There are gaps in knowledge regarding how the family caregiver deals with the burden of caring for elderly people with dementia.
To evaluate the family caregivers' perception of quality of life (QoL), burden, resilience and religiosity and relate them with cognitive aspects and occurrence of neuropsychiatric symptoms of elderly with dementia.
Data from the QoL-AD scale, caregivers' version, burden interview, resilience scale, Beck depression inventory and PDUREL of 50 family caregivers were correlated with disability assessment for dementia, neuropsychiatric inventory and clinical aspects of 50 elderly with dementia.
Linear regression showed that resilience is related with better perceived QoL (<0.001), severity of dementia (=0.008), higher intrinsic religiosity (IR) (=0.044) and lower occurrence of depressive symptoms (=0.001). Increased burden of family caregivers was associated with a higher occurrence of neuropsychiatric symptoms, education of the elder with dementia, and worse perceived QoL (<0.001). Lower level of organizational religiosity was associated with severity of dementia.
The most resilient caregivers had higher QoL and IR, fewer depressive symptoms, and cared for elders with more severe dementia. Cognitive and sociodemographic aspects, as well as neuropsychiatric symptoms, in the elderly with dementia were associated with QoL and greater caregiver burden.
关于家庭照顾者如何应对照顾老年痴呆症患者的负担,目前存在知识空白。
评估家庭照顾者对生活质量(QoL)、负担、心理弹性和宗教信仰的认知,并将其与老年痴呆症患者的认知方面及神经精神症状的发生情况相关联。
50名家庭照顾者的QoL-AD量表(照顾者版本)、负担访谈、心理弹性量表、贝克抑郁量表和宗教信仰量表的数据,与50名老年痴呆症患者的痴呆症残疾评估、神经精神症状量表及临床情况相关联。
线性回归显示,心理弹性与更好的生活质量感知(<0.001)、痴呆症严重程度(=0.008)、更高的内在宗教信仰(IR)(=0.044)以及更低的抑郁症状发生率(=0.001)相关。家庭照顾者负担加重与神经精神症状的更高发生率、老年痴呆症患者的教育程度以及更差的生活质量感知相关(<0.001)。组织宗教信仰水平较低与痴呆症严重程度相关。
心理弹性最强的照顾者生活质量和内在宗教信仰更高,抑郁症状更少,且照顾的是痴呆症更严重的老年人。老年痴呆症患者的认知和社会人口学方面以及神经精神症状与生活质量和照顾者更大的负担相关。