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记忆空白、词不达意和关键错误——纤维肌痛患者认知困难的男性体验。

Memory gaps, lost words and crucial mistakes - Men's experiences of cognitive difficulties in fibromyalgia.

机构信息

Faculty of Health and Welfare, Satakunta University of Applied Sciences, Pori, Finland.

Institute of Health and Society, Medical Faculty, University of Oslo, Oslo, Norway.

出版信息

Chronic Illn. 2021 Mar;17(1):41-52. doi: 10.1177/1742395318815947. Epub 2018 Dec 26.

Abstract

OBJECTIVES

The purpose of the study was to explore the impact of perceived cognitive problems on daily life in men with fibromyalgia.

METHOD

The data were collected through life-story interviews of eight men with fibromyalgia. Narrative analysis was conducted to create model narratives that comprise the content and storylines across the data.

RESULTS

Three model narratives are presented in the findings to describe the scope and severity of the cognitive problems. The participants' experiences of cognitive problems varied from occasional concentration problems to severe and complex difficulties in memory, problem solving and verbal fluency. The impact of these problems on daily life was substantial and overshadowed the participants' domestic life, social relations and work performance. In some cases, maintaining a role in working life was perceived as challenging.

DISCUSSION

These patients are usually examined and treated in primary health care settings and the assessment tools and interventions should be applicable in these settings. More research is needed to develop effective interventions that address not only memory but also individual's ability to solve complex problems and to work under pressure as well as the level of verbal fluency, which all are relevant issues in terms of work ability in contemporary society.

摘要

目的

本研究旨在探讨男性纤维肌痛患者感知认知问题对日常生活的影响。

方法

通过对 8 名纤维肌痛男性患者的生活史访谈收集数据。采用叙述分析方法,创建包含数据内容和故事情节的示范叙述。

结果

研究结果呈现了三个示范叙述,以描述认知问题的范围和严重程度。参与者的认知问题体验从偶尔的注意力问题到严重和复杂的记忆、解决问题和言语流畅性困难不等。这些问题对日常生活的影响是巨大的,掩盖了参与者的家庭生活、社会关系和工作表现。在某些情况下,维持工作生活中的角色被认为是具有挑战性的。

讨论

这些患者通常在初级保健环境中接受检查和治疗,评估工具和干预措施应适用于这些环境。需要进一步研究以开发有效的干预措施,不仅针对记忆,还针对个体解决复杂问题和在压力下工作的能力以及言语流畅性水平,这些都是当代社会工作能力方面的相关问题。

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