一段漫长、曲折的痛苦历程，没有明确的起点，也没有不确定的未来前景——这是最近被诊断出患有纤维肌痛症的个体的叙述。
A long, winding trajectory of suffering with no definite start and uncertain future prospects - narratives of individuals recently diagnosed with fibromyalgia.
机构信息
Department of Interdisciplinary Health Sciences, Institute of Health and Society, Medical Faculty, University of Oslo, Oslo Norway.
出版信息
Int J Qual Stud Health Well-being. 2022 Dec;17(1):2056956. doi: 10.1080/17482631.2022.2056956.
PURPOSE
Fibromyalgia is a contested illness with unknown aetiology and poorly understood development. The present aim is to explore the pre-diagnostic illness trajectory narrated by individuals recently diagnosed with fibromyalgia (FM).
METHODS
Individual interviews about the course of the illness were conducted with seven women and three men (age from early 20s to 50s) who had recently been diagnosed with FM. A narrative analysis of what the interviewees told and how the stories were narrated was conducted.
RESULTS
The findings are expressed by three storylines. "Strenuous life and alerted body preluding illness" displays a difficult, unsupported life and bodily sensitivity to stimuli. "Recurrent pains unfolding to become a lasting and complex illness" describes individuals pushing themselves to meet social obligations until they come to a full stop. "Diagnosed but still uncertain presence and future" portrays satisfaction with finally being diagnosed with FM and being supported by others, but still there are no solutions as to do about it.
CONCLUSIONS
The three storylines portray a long, winding trajectory of suffering starting before the onset of illness, and unfolding illness gradually becoming persistent and overwhelming. Finally, a diagnosis of FM is arrived at, but how the situation will evolve is uncertain.
目的
纤维肌痛是一种病因不明且发病机制尚不清楚的有争议的疾病。本研究旨在探讨最近被诊断为纤维肌痛（FM）的个体所描述的预诊断疾病轨迹。
方法
对 7 名女性和 3 名男性（年龄在 20 多岁到 50 多岁之间）进行了有关疾病过程的个体访谈，这些人最近被诊断为 FM。对受访者的讲述内容和叙述方式进行了叙述分析。
结果
研究结果通过三个故事情节来表达。“紧张的生活和警觉的身体预示着疾病”显示了艰难、无人支持的生活和对刺激的身体敏感性。“反复发作的疼痛逐渐发展成为持久而复杂的疾病”描述了个体们为了满足社会义务而不断地推动自己，直到他们完全停止。“被诊断，但仍不确定的现在和未来”描绘了对最终被诊断为 FM 并得到他人支持的满意，但对于如何处理这种情况仍没有解决方案。
结论
这三个故事情节描绘了一条始于疾病发作之前的漫长而曲折的痛苦轨迹，逐渐发展为持续和压倒性的疾病。最后，诊断出了 FM，但情况将如何发展仍不确定。
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