Sallinen Merja, Kukkurainen Marja Leena, Peltokallio Liisa, Mikkelsson Marja, Anderberg Ulla Maria
Faculty of Health Care and Social Services, Satakunta University of Applied Sciences, Pori, Finland.
Health Care Women Int. 2012;33(5):473-94. doi: 10.1080/07399332.2011.645967.
In this article we explored narrated life stories of 20 women with a long history of fibromyalgia to reach a deeper understanding of how people interpret the causes and consequences of different life events and illness experiences. Based on narrative analysis, we identified three model narratives that illustrate the different life courses of women with fibromyalgia. In addition, we described a counternarrative that questions fibromyalgia as a chronic disease. In this narrative study, we give insights to the invisible symptoms and unheard experiences that are associated with fibromyalgia and to the ongoing discussion on the etiology and maintenance of fibromyalgia.
在本文中，我们探究了20位患有纤维肌痛症多年的女性的叙述性人生故事，以更深入地理解人们如何解读不同生活事件和疾病经历的成因及后果。基于叙事分析，我们确定了三种模式化叙事，它们阐释了纤维肌痛症女性的不同人生历程。此外，我们描述了一种对纤维肌痛症作为一种慢性病提出质疑的反叙事。在这项叙事研究中，我们揭示了与纤维肌痛症相关的无形症状和未被倾听的经历，以及关于纤维肌痛症病因和持续存在因素的 ongoing discussion（此处原文有误，可能是ongoing discussions，可译为“持续讨论”） 。
