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照顾者对早期自闭症评估中心系统满意度的混合方法分析

Mixed Methods Analysis of Caregiver Satisfaction With the Early Autism Evaluation Hub System.

作者信息

Martin Ann Marie, Huskins Jordan, Paxton Angela, Nafiseh Amira, Ciccarelli Mary R, Keehn Brandon, McNally Keehn Rebecca

机构信息

Department of Pediatrics, Indiana University School of Medicine, Indianapolis, IN, USA.

Department of Speech, Language, and Hearing Sciences, Purdue University, West Lafayette, IN, USA.

出版信息

J Patient Exp. 2024 Dec 12;11:23743735241305531. doi: 10.1177/23743735241305531. eCollection 2024.

Abstract

Community-based methods for autism evaluation may be one solution for ameliorating delays in diagnosis, which are exacerbated for children from minoritized backgrounds. However, limited research has examined caregiver satisfaction with community-based models of autism evaluation. Thus, our objective was to use a mixed-methods approach to investigate caregiver satisfaction with their child's autism evaluation conducted across a statewide system of primary care autism diagnosis. Results indicated overall high satisfaction and no significant differences were found between satisfaction total scores nor caregiver stress and any child/family demographic variables. Satisfaction and stress were also not related to autism diagnostic outcome, clinician diagnostic certainty, or diagnostic accuracy. Qualitative suggestions for evaluation improvement include more thorough explanation of diagnosis and service recommendations. Overall, our findings indicate high caregiver satisfaction with multiple dimensions of community-based autism evaluation in the primary care setting, suggesting this may be a feasible and sustainable model that caregivers find acceptable.

摘要

基于社区的自闭症评估方法可能是缓解诊断延迟的一种解决方案,对于来自少数族裔背景的儿童来说,诊断延迟问题更为严重。然而,关于照顾者对基于社区的自闭症评估模式的满意度的研究有限。因此,我们的目标是采用混合方法,调查照顾者对其孩子在全州初级保健自闭症诊断系统中进行的自闭症评估的满意度。结果表明总体满意度较高,在满意度总分、照顾者压力与任何儿童/家庭人口统计学变量之间未发现显著差异。满意度和压力也与自闭症诊断结果、临床医生诊断确定性或诊断准确性无关。关于评估改进的定性建议包括对诊断和服务建议进行更全面的解释。总体而言,我们的研究结果表明照顾者对初级保健环境中基于社区的自闭症评估的多个维度高度满意,这表明这可能是一种照顾者认为可以接受的可行且可持续的模式。

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