回应 Ballantyne 和 Schaefer 的“同意与参与健康数据研究的道德义务”一文。
In response to Ballantyne and Schaefer's 'Consent and the ethical duty to participate in health data research'.
机构信息
Florence Nightingale Faculty of Nursing, Midwifery and Palliative Care, Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation, King's College London, London, UK.
King's College Hospital NHS Foundation Trust, London, UK.
出版信息
J Med Ethics. 2019 May;45(5):351-352. doi: 10.1136/medethics-2018-105271. Epub 2019 Jan 7.
Abstract
We welcome Ballantyne & Schaefer's discussion of the issues concerning consent and use of health data for research. In response to their acknowledgement of the need for public debate and discussion, we provide evidence from our own public consultation on this topic.
摘要
我们欢迎 Ballantyne 和 Schaefer 对涉及同意和使用健康数据进行研究的问题进行讨论。回应他们对公共辩论和讨论的必要性的认可，我们从我们自己在这个主题上的公开咨询中提供证据。
相似文献
1
In response to Ballantyne and Schaefer's 'Consent and the ethical duty to participate in health data research'.回应 Ballantyne 和 Schaefer 的“同意与参与健康数据研究的道德义务”一文。
J Med Ethics. 2019 May;45(5):351-352. doi: 10.1136/medethics-2018-105271. Epub 2019 Jan 7.
2
Privacy.隐私。
Prof Ethics. 1995 Fall-Winter;3(3-4):3-25. doi: 10.5840/profethics199433/413.
3
A Society of Gastrointestinal and Endoscopic Surgeons (SAGES) statement on closed social media (Facebook®) groups for clinical education and consultation: issues of informed consent, patient privacy, and surgeon protection.胃肠与内镜外科医生学会（SAGES）关于临床教育和咨询的封闭式社交媒体（Facebook®）群组的声明：知情同意、患者隐私和外科医生保护问题。
Surg Endosc. 2019 Jan;33(1):1-7. doi: 10.1007/s00464-018-6569-2. Epub 2018 Nov 12.
4
Perspectives on patient confidentiality in the age of AIDS.艾滋病时代的患者保密问题透视
Syracuse Law Rev. 1993;44(3):967-1001.
5
Confidentiality and its limits: ethical guidelines for maternal/pediatric HIV infection.保密性及其限制：母婴艾滋病毒感染的伦理准则
Creighton Law Rev. 1992 Jun;25(4):1439-60.
6
Consent and the ethical duty to participate in health data research.同意与参与健康数据研究的道德义务。
J Med Ethics. 2018 Jun;44(6):392-396. doi: 10.1136/medethics-2017-104550. Epub 2018 Jan 22.
7
Ethics In Health Care Settings: Practices Of Healthcare Professionals And Perceptions Of Patients Regarding Informed Consent, Confidentiality And Privacy At Two Tertiary Care Hospitals Of Islamabad, Pakistan.巴基斯坦伊斯兰堡两家三级医疗医院中医疗保健专业人员的伦理实践以及患者对知情同意、保密和隐私的看法
J Ayub Med Coll Abbottabad. 2017 Jul-Sep;29(3):472-476.
8
Surgery should be routinely videoed.手术应当常规录像。
J Med Ethics. 2023 Apr;49(4):235-239. doi: 10.1136/medethics-2022-108171. Epub 2022 Apr 22.
9
Patients' perception and actual practice of informed consent, privacy and confidentiality in general medical outpatient departments of two tertiary care hospitals of Lahore.拉合尔两家三级医疗医院普通内科门诊患者对知情同意、隐私和保密的认知与实际做法。
BMC Med Ethics. 2008 Sep 25;9:14. doi: 10.1186/1472-6939-9-14.
10
Reporting and referring research participants: ethical challenges for investigators studying children and youth.报告和转介研究参与者：研究儿童和青少年的调查人员面临的伦理挑战。
Ethics Behav. 1994;4(2):87-95. doi: 10.1207/s15327019eb0402_2.
引用本文的文献
1
Patients' and Members of the Public's Wishes Regarding Transparency in the Context of Secondary Use of Health Data: Scoping Review.患者和公众对健康数据二次使用背景下透明度的期望：范围综述。
J Med Internet Res. 2023 Apr 13;25:e45002. doi: 10.2196/45002.
本文引用的文献
1
CogStack - experiences of deploying integrated information retrieval and extraction services in a large National Health Service Foundation Trust hospital.CogStack-在大型国民保健制度基金会信托医院中部署集成信息检索和提取服务的经验。
BMC Med Inform Decis Mak. 2018 Jun 25;18(1):47. doi: 10.1186/s12911-018-0623-9.
2
Consent and the ethical duty to participate in health data research.同意与参与健康数据研究的道德义务。
J Med Ethics. 2018 Jun;44(6):392-396. doi: 10.1136/medethics-2017-104550. Epub 2018 Jan 22.
3
Permission to contact (PTC)--a strategy to enhance patient engagement in translational research.联系许可（PTC）——一种提高患者参与转化研究的策略。
Biopreserv Biobank. 2013 Aug;11(4):245-52. doi: 10.1089/bio.2013.0023.
4
Public attitudes to the use in research of personal health information from general practitioners' records: a survey of the Irish general public.公众对使用全科医生记录中的个人健康信息进行研究的态度：对爱尔兰公众的调查。
J Med Ethics. 2011 Jan;37(1):50-5. doi: 10.1136/jme.2010.037903. Epub 2010 Nov 11.
5
Patients' attitudes towards sharing their health information.患者对分享其健康信息的态度。
Int J Med Inform. 2006 Jul;75(7):530-41. doi: 10.1016/j.ijmedinf.2005.08.009. Epub 2005 Sep 28.
6
Public attitudes towards the use of primary care patient record data in medical research without consent: a qualitative study.关于未经同意在医学研究中使用基层医疗患者记录数据的公众态度：一项定性研究。
J Med Ethics. 2004 Feb;30(1):104-9. doi: 10.1136/jme.2003.005157.
7
Patient privacy and confidentiality.患者隐私与保密。
BMJ. 2003 Apr 5;326(7392):725-6. doi: 10.1136/bmj.326.7392.725.
8
Patients' consent preferences for research uses of information in electronic medical records: interview and survey data.患者对电子病历中信息用于研究的同意偏好：访谈与调查数据
BMJ. 2003 Feb 15;326(7385):373. doi: 10.1136/bmj.326.7385.373.
9
Consent, confidentiality, and the threat to public health surveillance.同意、保密与公共卫生监测面临的威胁。
BMJ. 2002 May 18;324(7347):1210-3. doi: 10.1136/bmj.324.7347.1210.
Zotero 插件