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塞尔维亚乳糜泻患儿及其父母生活质量、焦虑和抑郁症状评估。

Assessment of Quality of Life, Anxiety and Depressive Symptoms in Serbian Children with Celiac Disease and their Parents.

机构信息

Higher Education School of Professional Health Studies, Belgrade, Serbia.

Faculty of Medical Sciences, Department of Pharmacy, University of Kragujevac, Kragujevac, Serbia.

出版信息

Indian J Pediatr. 2019 May;86(5):427-432. doi: 10.1007/s12098-018-2836-4. Epub 2019 Jan 12.

Abstract

OBJECTIVES

To evaluate the level of health-related quality of life (QoL) and presence of anxiety and depressive symptoms in Serbian children with celiac disease from the perspective of patients and their parents.

METHODS

This cross-sectional study investigated the group of children and adolescents with celiac disease aged 5-18 y, and at least one parent of each patient with celiac disease. The patients and their parents were recruited at the Institute of Mother and Child Health of Serbia and the University Children's Hospital in Belgrade. The instruments used in this study were child-self and parent-proxy versions of the Pediatric Quality of Life Inventory (PedsQL), Screen for Child Anxiety Related Emotional Disorder (SCARED) and Short Mood and Feelings Questionnaire (MFQ). Additional information was collected from the medical records of each patient.

RESULTS

According to the PedsQL questionnaire, the quality of life was similarly assessed by both parents and their children (p > 0.05), as well as the presence of depressive symptoms according to MFQ questionnaire. However, a statistically significant difference was observed in the total score of the SCARED questionnaire for children and parents [total score (p < 0.05), panic-somatic disturbance (p < 0.01) and social anxiety (p < 0.01)].

CONCLUSIONS

The patients and their parents in Serbia have similarly assessed the quality of life of children with celiac disease, but the differences in the scores of SCARED questionnaire indicate that it is necessary to include both children and parents in the assessment of QOL.

摘要

目的

从患者及其家长的角度评估塞尔维亚乳糜泻儿童的健康相关生活质量(QoL)水平和焦虑、抑郁症状的发生情况。

方法

本横断面研究调查了年龄在 5-18 岁的乳糜泻患儿及其至少一名患儿家长。患儿及其家长在塞尔维亚母婴健康研究所和贝尔格莱德儿童医院招募。本研究使用的工具包括儿童自我报告和家长报告的儿童生活质量问卷(PedsQL)、儿童焦虑相关情绪障碍筛查量表(SCARED)和心境与感受问卷(MFQ)。每位患儿的病历中还收集了其他信息。

结果

根据 PedsQL 问卷,父母和他们的孩子对生活质量的评估相似(p>0.05),根据 MFQ 问卷,抑郁症状的存在也相似。然而,儿童和家长 SCARED 问卷的总分存在统计学差异[总分(p<0.05)、惊恐躯体障碍(p<0.01)和社交焦虑(p<0.01)]。

结论

塞尔维亚的患儿及其家长对乳糜泻患儿的生活质量有相似的评估,但 SCARED 问卷的评分差异表明,有必要让儿童和家长共同参与 QoL 的评估。

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