Punch Jerry L, Hitt Rose, Smith Sandi W
Department of Communicative Sciences and Disorders, Herbert J. Oyer Speech & Hearing Center, Michigan State University, 1026 Red Cedar Road, East Lansing, MI 48824, United States.
Department of Communication, Michigan State University, United States.
J Commun Disord. 2019 Mar-Apr;78:33-45. doi: 10.1016/j.jcomdis.2019.01.001. Epub 2019 Jan 6.
We sought to identify multidimensional factors associated with health-related quality of life (HRQoL) for use in developing an inventory in which HRQoL is a core concept in evaluating the impact of hearing loss and the efficacy of rehabilitative interventions.
A qualitative approach was used in which we posed two major questions to a focus group consisting of eight adults with self-reported, bilateral sensorineural hearing loss of varying degrees. In essence, those questions were: (1) How do you define quality of life?, and (2) Can you describe specific incidents in your everyday life in which your hearing loss has impacted your quality of life? The discussion was embedded within a framework that utilized a modification of the Critical Incident Technique (CIT). We used well-established analytic techniques to translate the data into unitized thought units, which we coded into meaningful categories. Response frequency was used to determine the salience of responses in addressing the research questions.
Participants defined QoL in terms of a number of primary dimensions, most of which were directly or indirectly associated with specific recalled incidents in which those dimensions have played a notable role in contributing to their QoL.
The use of well-established methods to gather and analyze qualitative data generated by self-report techniques offers a promising direction for developing a standardized inventory for identifying the factors that impact QoL for persons with hearing loss and for evaluating the success of intervention strategies aimed at improving their HRQoL.
我们试图确定与健康相关生活质量(HRQoL)相关的多维度因素,以用于开发一种量表,其中HRQoL是评估听力损失影响和康复干预效果的核心概念。
采用定性方法,我们向一个由八名自我报告有不同程度双侧感音神经性听力损失的成年人组成的焦点小组提出了两个主要问题。实质上,这些问题是:(1)你如何定义生活质量?(2)你能描述日常生活中听力损失影响你生活质量的具体事件吗?讨论嵌入在一个利用关键事件技术(CIT)修改版的框架内。我们使用成熟的分析技术将数据转化为统一的思维单元,并将其编码为有意义的类别。响应频率用于确定回答在解决研究问题方面的显著性。
参与者从多个主要维度定义了生活质量,其中大多数直接或间接与特定的回忆事件相关,在这些事件中,这些维度在影响他们的生活质量方面发挥了显著作用。
使用成熟的方法收集和分析自我报告技术产生的定性数据,为开发标准化量表提供了一个有前景的方向,该量表用于识别影响听力损失患者生活质量的因素,并评估旨在改善他们健康相关生活质量的干预策略的成功性。