Santos Teresa, de Matos Margarida Gaspar, Marques Adilson, Simões Celeste, Leal Isabel, Machado Maria do Céu
FMH, Faculdade de Motricidade Humana (Equipa Aventura Social)/Universidade de Lisboa, Lisboa, Portugal.
William James Center for Research, ISPA-Instituto Universitário, Lisboa, Portugal.
Int J Pediatr. 2018 Dec 16;2018:9382648. doi: 10.1155/2018/9382648. eCollection 2018.
Living with a chronic disease (CD) in adolescence involves new multifaceted challenges. This study aims to conduct a psychosocial characterization of a group of adolescents with chronic diseases in a hospital setting and to compare such dimensions for the total group and for different diseases. A cross-sectional study included 135 adolescents with chronic diseases (51.9% boys; 48.1% girls), having an average age of 14±1.5 years (SD=1.5) and attending a paediatric outpatient department in a hospital setting. Statistically significant differences were found among the different chronic diseases for the variables self-regulation (adolescents with diabetes had significantly higher competencies) and multiple psychosomatic symptoms (adolescents with neurologic diseases reported significantly more complaints). Boys presented both better health-related quality of life and psychosomatic health when compared to girls. No statistically significant differences were observed for health-related quality of life, psychosomatic health, resilience, and social support. These findings bring important suggestions especially while planning interventions, which must take into account the promotion of a healthy psychosocial development, through an inclusive perspective (covering different chronic diseases), that take into consideration specific and gendered approaches. Such suggestions might help healthcare professionals to better plan interventions in order to increase their effectiveness.
青少年患有慢性病面临着多方面的新挑战。本研究旨在对医院环境中一组患有慢性病的青少年进行心理社会特征分析,并比较整个群体以及不同疾病群体在这些方面的差异。一项横断面研究纳入了135名患有慢性病的青少年(男孩占51.9%;女孩占48.1%),平均年龄为14±1.5岁(标准差=1.5),他们均在医院的儿科门诊就诊。研究发现,在自我调节(糖尿病青少年的能力显著更高)和多种心身症状(神经疾病青少年报告的症状明显更多)这两个变量上,不同慢性病之间存在统计学上的显著差异。与女孩相比,男孩的健康相关生活质量和心身健康状况均更好。在健康相关生活质量、心身健康、心理韧性和社会支持方面未观察到统计学上的显著差异。这些发现带来了重要建议,尤其是在规划干预措施时必须考虑到通过包容性视角(涵盖不同慢性病)促进健康的心理社会发展,同时考虑到具体的针对性别方法。这些建议可能有助于医疗保健专业人员更好地规划干预措施,以提高其有效性。